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| childhood cancer survivor study: Childhood Cancer Survivorship National Research Council, Institute of Medicine, National Cancer Policy Board, 2003-10-15 Only more recently has it been realized that the intense effort to care for and cure a child with cancer does not end with survival. Continued surveillance and a variety of interventions may, in many cases, be needed to identify and care for consequences of treatment that can appear early or only after several decades and impair survivors' health and quality of life. The more than two-thirds of childhood cancer survivors who experience late effects-that is, complications, disabilities, or adverse outcomes-as a result of their disease, its treatment, or both, are the focus of this report which outlines a comprehensive policy agenda that links improved health care delivery and follow-up, investments in education and training for health care providers, and expanded research to improve the long-term outlook for this growing population now exceeding 270,000 Americans. |
| childhood cancer survivor study: Childhood Cancer and Functional Impacts Across the Care Continuum National Academies of Sciences Engineering and Medicine, Health and Medicine Division, Board on Health Care Services, Committee on Childhood Cancers and Disability, 2021-09-09 Since the late 1960s, the survival rate in children and adolescents diagnosed with cancer has steadily improved, with a corresponding decline in the cancer-specific death rate. Although the improvements in survival are encouraging, they have come at the cost of acute, chronic, and late adverse effects precipitated by the toxicities associated with the individual or combined use of different types of treatment (e.g., surgery, radiation, chemotherapy). In some cases, the impairments resulting from cancer and its treatment are severe enough to qualify a child for U.S. Social Security Administration disability benefits. At the request of Social Security Administration, Childhood Cancer and Functional Impacts Across the Care Continuum provides current information and findings and conclusions regarding the diagnosis, treatment, and prognosis of selected childhood cancers, including different types of malignant solid tumors, and the effect of those cancers on childrenâ (TM)s health and functional capacity, including the relative levels of functional limitation typically associated with the cancers and their treatment. This report also provides a summary of selected treatments currently being studied in clinical trials and identifies any limitations on the availability of these treatments, such as whether treatments are available only in certain geographic areas. |
| childhood cancer survivor study: Practical Geriatric Oncology Arti Hurria, Harvey Jay Cohen, 2010-09-13 The risk of cancer increases with age, and the number of older adults seeking treatment is increasing dramatically in line with the aging population. The care of older patients differs from that of younger adults because of differences in the biology of the tumor, age-related differences in host physiology, comorbidity burden and psychosocial issues, which might impact the efficacy and side effects of cancer therapy. Practical Geriatric Oncology is a comprehensive, evidence-based text that synthesizes the growing literature in this field and provides practical guidelines to the care of older adults with cancer. Coverage includes patient assessment, management of solid tumors and hematologic malignancies, the impact of age on the pharmacology of cancer therapy, surgical oncology and radiation oncology in the older adult, symptom management and supportive care. In addition to serving as core reading for oncologists and hematologists, the book will also be a useful work for other healthcare professionals who provide oncology care, including surgeons, radiation oncologists, palliative care doctors, primary care providers, geriatricians and nurses. |
| childhood cancer survivor study: Handbook of Long Term Care of The Childhood Cancer Survivor Grace A. Mucci, Lilibeth R. Torno, 2015-07-20 This authoritative reference examines in depth the myriad challenges facing pediatric cancer survivors and proposes a robust framework for structured follow-up of these patients through adulthood. Approaches to long-term follow-up include both established models of care and targeted models of lifelong surveillance of late effects by bodily systems and neurological outcomes. Sections devoted to quality of life and re-entry after treatment focus on key concerns such as health risk behaviors, school and career issues, psychological challenges, and care disparities. And a robust resources section adds extra usefulness to the expert coverage. Among the Handbook's topics: • Developmental considerations in the transition from child and adolescent to adult survivorship. • Long-term follow-up roadmaps by disease and treatment. • Neuropsychological effects of pediatric brain tumors and associated treatment. • Building resiliency in childhood cancer survivors: a clinician’s perspective. • School issues and educational strategies for survivors of childhood cancer. • Educating and preparing the childhood cancer survivor for long-term care: a curriculum model for cancer centers. A work of rare scope, scholarship, and clinical acumen, the Handbook of Long-Term Care of the Childhood Cancer Survivor is a rewarding, practice-building resource essential to a wide range of healing professionals, including primary care physicians, pediatricians, oncologists, nurses, psychologists, neuropsychologists, child psychologists, and licensed therapists. |
| childhood cancer survivor study: Childhood Cancer Survivors Nancy Keene, Wendy Hobbie, Kathy Ruccione, 2014-03-01 More than 325,000 children, teens, and adults in the United States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children can affect growing bodies and developing minds. If survivors know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop. The third edition of Childhood Cancer Survivors charts the territory for survivors by providing state-of-the-art information about: Medical late effects from treatment Emotional aspects of surviving cancer Schedules for follow-up care Challenges in the heath-care system Lifestyle choices to maximize health Discrimination in employment or insurance Woven throughout the text are stories from more than 100 survivors and parents. Authors Keene, Hobbie, and Ruccione are experts in the field of childhood cancer. Keene is the mother of a survivor of childhood leukemia and the author of several books including Childhood Leukemia, Childhood Cancer, Educating the Child with Cancer, and Chemo, Craziness & Comfort. Hobbie is Associate Director of the Cancer Survivorship Program at Children's Hospital of Philadelphia. Ruccione is Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Children's Center for Cancer and Blood Diseases at Children's Hospital Los Angeles. |
| childhood cancer survivor study: Cancer Incidence and Survival Among Children and Adolescents , 1999 |
| childhood cancer survivor study: Late Effects of Childhood Cancer Daniel Green, Hamish Wallace, 2003-12-26 The treatment of childhood cancer has become increasingly successful over the last forty years, and during the last two decades in particular, and the overall cure rate is now 60-70%. This, in turn, has introduced new issues for the clinician as the number of long-term survivors has increased. Some of the therapies that have contributed most to the improvement in survival are now known to have serious consequences for the patient in later life, and many survivors will be affected by physical, educational and psychological disability to a lesser or greater degree. This definitive reference brings together all aspects of long-term effects of treatment for cancer during childhood in a single comprehensive volume. International in perspective, the book is structured according to complication rather than original site of malignancy for ease of reference. Topics covered include problems in the neurological system and special senses of sight and sound, cardiovascular, respiratory, gastrointestinal, urological and musculoskeletal complications, effects on the endocrine system and, in particular, future fertility, and secondary cancers. The book also reviews in detail the important issues of quality of life, prevention initiatives and strategies for long-term follow up. Key point summaries are included throughout, and the references are annotated to guide the reader quickly to seminal primary papers and key review articles. With an accessible and consistent approach throughout, Late Effects of Childhood Cancer is an invaluable source of information and guidance for pediatric oncologists, who need to keep fully informed in order to advise patients and their parents appropriately, and also for pediatric and adult endocrinologists, adult oncologists and other physicians to whom the patient with late effects may initially present. |
| childhood cancer survivor study: Principles and Practice of Pediatric Oncology Philip A. Pizzo, 2011 Thoroughly updated for its Sixth Edition,Principles and Practice of Pediatric Oncologyprovides a comprehensive review of the multiple disciplines that make up the care and research agendas for children with cancer. It is the most comprehensive textbook of pediatric oncology ever put together, covering biology and genetics and detailing the diagnosis, multimodal treatment, and long-term management of patients with cancer. The fundamental principles of supportive care and the psychosocial aspects of support for patients and families are also discussed. |
| childhood cancer survivor study: Outcome Measures for Health Education and Other Health Care Interventions Kate Lorig, Anita Stewart, Philip Ritter, Virginia Gonzalez, Diana Laurent, John Lynch, 1996-04-18 Although Outcome Measurement has become an important tool in the evaluation of health promotion patient education and other health services interventions, problems remain in locating reliable measurements and scales. This book provides a unique compilation of more than 50 self-administered scales for measuring health behaviors, health status, self-efficacy, and health-care utilization. |
| childhood cancer survivor study: Survivors of Childhood and Adolescent Cancer Cindy L. Schwartz, Wendy L. Hobbie, Louis S. Constine, Kathleen S. Ruccione, 2015-09-03 This book is a comprehensive guide that will help medical professionals – pediatric oncologists, nurses, pediatricians, family practitioners, internists, radiation oncologists, surgeons – to understand and manage the long-term effects of treatment for childhood and adolescent cancer. The consequences of treatment are described for each organ system, with explanation of pathophysiology, clinical manifestations, detection and screening and management. Disease- and organ-based algorithms of care and tables designed to facilitate the assessment of late effects are highlights of the book and will assist in the provision of hands-on care that is up to date and geared to clinical need. Among the other topics addressed are stem cell transplantation, psychological care, legal issues, transition to adulthood and methodological issues in the study of survivorship care. |
| childhood cancer survivor study: Challenges after treatment for Childhood Cancer, An Issue of Pediatric Clinics of North America E-Book Max J. Coppes, Leontien Kremer, 2020-11-14 In collaboration with Consulting Editor, Dr. Bonita Stanton, Drs. Max J. Coppes and Leontien Kremer have created a comprehensive issue devoted to Challenges After treatment for Childhood Cancer. They have selected top experts to provide current clinical reviews for clinicians. Articles are specifically devoted to the following topics: Stories from survivors and introduction to survivorship; What we know about survivors and how we know this: Early studies, early cohorts, registries and current cohorts of survivors; Radiotherapy and late effects; Guidelines for survivorship care after childhood cancer; Lifestyle, fatigue, social integration in survivors; Psychological & neurocognitive health; Second cancer risk: Risk, exposures, genetics; Cardiovascular and pulmonary disease; Fertility and reproductive complications; Endocrine health conditions; Renal and hepatic health after childhood cancer; Hearing and other neurologic problems; and The future of survivorship. Pediatricians will come away with clinical updates that they need to improve patient outcomes. |
| childhood cancer survivor study: Physical Activity and Cancer Kerry S. Courneya, Christine M. Friedenreich, 2010-11-26 This book explores in depth the relation between physical activity and cancer control, including primary prevention, coping with treatments, recovery after treatments, long-term survivorship, secondary prevention, and survival. The first part of the book presents the most recent research on the impact of physical activity in preventing a range of cancers. In the second part, the association between physical activity and cancer survivorship is addressed. The effects of physical activity on supportive care endpoints (e.g., quality of life, fatigue, physical functioning) and disease endpoints (e.g., biomarkers, recurrence, survival) are carefully analyzed. In addition, the determinants of physical activity in cancer survivors are discussed, and behavior change strategies for increasing physical activity in cancer survivors are appraised. The final part of the book is devoted to special topics, including the relation of physical activity to pediatric cancer survivorship and to palliative cancer care. |
| childhood cancer survivor study: Childhood Cancer Survivors with Chronic Diseases Christian Müller, 2023-08-18 This book is a unique documentation about the whole range of childhood cancer late effects and discusses their different ways of global influences. The number of childhood cancer survivors is increasing continuously. Thus the topic is also getting more important and well informed caregivers are needed in their institutions. Survivorship after childhood cancer is not the same as survivorship after cancer in adults’ age. All currently known late effects for former childhood cancer patients are explored in detail: not only organ-related but also psychosocial related long-term sequelae. It closes the gap of missing detailed information and their consequences for individuals and society. Past, presence, and future of childhood cancer late effects is presented as well as models of care for childhood cancer survivors. This book is essential for all professionals who work with childhood cancer survivors, no matter if oncologists, psychologists, social workers, or patient advocates. It is also a helpful textbook for university classrooms and seminars as well as for pediatric oncology fellowship programs. |
| childhood cancer survivor study: Late Treatment Effects and Cancer Survivor Care in the Young Jörn D. Beck, Carsten Bokemeyer, Thorsten Langer, 2020-11-05 This comprehensive guide describes the aftercare that is appropriate in young cancer patients and discusses in detail the risk and detection of treatment sequelae. It explains the impacts on body and mind of both the disease itself and the different risk-adapted cancer treatments currently in use. Clear guidance is provided on diagnosis and management of the principal treatment-related toxicities in different organs and organ systems and for a wide variety of tumor types. In addition, the role of genetic polymorphisms in the development of adverse therapy-related outcomes is explored, and advice offered on genetic counselling. As the number of long-term survivors of childhood cancer and of cancer in young adults continues to grow, so issues surrounding potential sequelae, second malignancies, and quality of life are becoming ever more important. All practitioners involved in the care of young cancer patients will find this book to be a helpful source of up-to-date information and assistance. |
| childhood cancer survivor study: Pediatric Cancer Survivors , 19?? |
| childhood cancer survivor study: Multiple Comparison Procedures Yosef Hochberg, Ajit C. Tamhane, 1987-10-05 Offering a balanced, up-to-date view of multiple comparison procedures, this book refutes the belief held by some statisticians that such procedures have no place in data analysis. With equal emphasis on theory and applications, it establishes the advantages of multiple comparison techniques in reducing error rates and in ensuring the validity of statistical inferences. Provides detailed descriptions of the derivation and implementation of a variety of procedures, paying particular attention to classical approaches and confidence estimation procedures. Also discusses the benefits and drawbacks of other methods. Numerous examples and tables for implementing procedures are included, making this work both practical and informative. |
| childhood cancer survivor study: Epidemiology of Childhood Cancer Julian Little, 1999 Cancer is the second commonest cause of death, after accidents, among children in developed countries, while in developing countries, improvements in the control of communicable diseases and the occurrence of premature delivery may lead to the emergence of cancer in children as a greater public health problem than in the past. The rationale for considering childhood cancers separately from cancers in adults in that there are differences in the sites of occurrence, in the histological appearance and in their clinical behavior. This book reviews the epidemiology of specific types of childhood cancer to mid-1997. The scale of the problem is first reviewed in a major compilation of data on the descriptive epidemiology of childhood cancer, then separate chapters describe studies of the different postulated causal factors and summarize what can be concluded from them. |
| childhood cancer survivor study: Endocrine and Metabolic Late Effects in Cancer Survivors Francesco Felicetti (Oncologist), Enrico Brignardello, Hanneke M. van Santen, 2021-11 This book analyzes in detail all aspects related to endocrine and metabolic late effects observed in patients treated for cancer, both in childhood and adulthood. The chapters focusing on the possible pathogenic mechanisms of late effects (i.e., premature aging and chronic inflammation) and on bone health in cancer survivors are particularly interesting and innovative. The volume also deals with hypothalamic-pituitary, thyroid and gonadal disorders, including infertility and how to prevent it. Finally, the relationship between metabolic alterations and cardiovascular diseases in cancer survivors is addressed. Thanks to advances in cancer treatment and supportive care, the five-year survival rate of cancer patients is constantly increasing. However, this undisputable success of medicine has a flip side: the late adverse effects of anticancer therapies. Pediatric oncologists were the first to cope with late complications of treatments, but today also adult oncologists and onco-hematologists recognize the relevance of this issue. Even though late effects observed in cancer survivors can affect any organ or system, endocrine and metabolic dysfunctions are the most frequently reported. Endocrine complications rarely influence life expectancy of cancer survivors, but they can significantly impact morbidity and quality of life. Among endocrine adverse effects, severe hypothalamic damage may be considered the most harmful in survivors, leading to morbid obesity, propensity to metabolic syndrome and cardiovascular disease. This book aims to disseminate the knowledge about endocrine and metabolic adverse effects of cancer therapies and about survivorship care. Since the number of cancer survivors is steadily growing in the general population, this publication is intended not only for endocrinologists but also for oncologists, onco-hematologists, internists, pediatric specialists in those areas and general practitioners, with the aim to better counsel and monitor cancer survivors. |
| childhood cancer survivor study: Survivors of Childhood and Adolescent Cancer Cindy L. Schwartz, Wendy L. Hobbie, Louis S. Constine, Kathleen S. Ruccione, 2005-10-29 It was not long ago that clinicians would say,“study ed at the 1975 meeting revealed. Among them was the late complications of cancer treatments we give to one based on data collected by the Late Effects Study children? You must be joking! We can start worrying Group, an international consortium that consisted about that when we start curing them! Meanwhile, initially of ?ve, then ten, pediatric centers. This was cure must be our only aim. ”These practitioners were the ?rst large scale, cooperative unit of its kind, - only partially correct in what seemed to be a glaring ganized speci?cally for the purpose of studying the truth, for, in fact, increasing numbers of children late effects of cancer therapy (the study of delayed were beginning to survive their malignancy,and the complications had been included as part of the or- long-term consequences of therapy would soon be- inal design in the National Wilms Tumor Study come critical. launched in 1969) [1]. These historical notes demon- It is well to remember that the delayed conse- strate that the epidemiologic,statistical and reco- quences of a cancer treatment delivered to develop- keeping mechanisms necessary for studying lo- ing organisms were ?rst studied long ago. It has been term survivors effectively were in the process of be- 100 years since Perthes reported in 1903 that growth ing established decades before the meeting in 1975. |
| childhood cancer survivor study: Frontal Lobe Function and Dysfunction Harvey S. Levin, Howard M. Eisenberg, Arthur Lester Benton, 1991 The cognitive and behavioral functions of the frontal lobes have been of great interest to neuroscientists, neurologists, psychologists and psychiatrists. Recent technical advances have made it possible to trace their neuroanatomical connections more precisely and to conduct evoked potential and neuroimaging studies in patients. This book presents a broad and authoritative synthesis of research progress in this field. It encompasses neuroanatomical studies; experiments involving temporal organization and working memory tasks in non-human primates; clinical studies of patients following frontal lobe excisions for intractable epilepsy; metabolic imaging in schizophrenia and affective disorder; neurobehavioral studies of patients with dementia, frontal lobe tumors, and head injuries; magnetic resonance imaging methods for studying human frontal lobe anatomy; theoretical approaches to describing frontal lobe functions; and rehabilitation of patients with frontal lobe damage including their core problem of diminished awareness. Written by a distinguished group of neuroscientists, psychologists and clinicians, Frontal Lobe Function and Dysfunction provides the best current source of information on this region of the brain and its role in cognition, behavior and clinical disorders. |
| childhood cancer survivor study: Handbook of Psychological Assessment in Primary Care Settings Mark E. Maruish, 2017-04-21 The second edition Handbook of Psychological Assessment in Primary Care Settings offers an overview of the application of psychological screening and assessment instruments in primary care settings. This indispensable reference addresses current psychological assessment needs and practices in primary care settings to inform psychologists, behavioral health clinicians, and primary care providers the clinical benefits that can result from utilizing psychological assessment and other behavioral health care services in primary care settings. |
| childhood cancer survivor study: Measurement of Stress, Trauma, and Adaptation B. Hudnall Stamm, 1996 |
| childhood cancer survivor study: Childhood Acute Lymphoblastic Leukemia Ajay Vora, 2017-04-21 This book provides a comprehensive and up-to-date review of all aspects of childhood Acute Lymphoblastic Leukemia, from basic biology to supportive care. It offers new insights into the genetic pre-disposition to the condition and discusses how response to early therapy and its basic biology are utilized to develop new prognostic stratification systems and target therapy. Readers will learn about current treatment and outcomes, such as immunotherapy and targeted therapy approaches. Supportive care and management of the condition in resource poor countries are also discussed in detail. This is an indispensable guide for research and laboratory scientists, pediatric hematologists as well as specialist nurses involved in the care of childhood leukemia. |
| childhood cancer survivor study: Cognition and Cancer Christina A. Meyers, James R. Perry, 2012-12-13 This book is a unique resource on the influence cancer and cancer treatments have on cognition. The majority of cancer patients on active treatment experience cognitive impairments often referred to as 'chemobrain' or 'chemofog'. In addition, patients with primary or metastatic tumors of the brain often experience direct neurologic symptoms. This book helps health care professionals working with cancer patients who experience cognitive changes and provides practical information to help improve care by reviewing and describing brain-behavior relationships; research-based evidence on cognitive changes that occur with various cancers and cancer treatments; assessment techniques, including neurocognitive assessment and neuroimaging techniques; and intervention strategies for affected patients. In short, it will explain how to identify, assess and treat these conditions. |
| childhood cancer survivor study: Cancer Care for the Whole Patient Institute of Medicine, Board on Health Care Services, Committee on Psychosocial Services to Cancer Patients/Families in a Community Setting, 2008-03-19 Cancer care today often provides state-of-the-science biomedical treatment, but fails to address the psychological and social (psychosocial) problems associated with the illness. This failure can compromise the effectiveness of health care and thereby adversely affect the health of cancer patients. Psychological and social problems created or exacerbated by cancer-including depression and other emotional problems; lack of information or skills needed to manage the illness; lack of transportation or other resources; and disruptions in work, school, and family life-cause additional suffering, weaken adherence to prescribed treatments, and threaten patients' return to health. Today, it is not possible to deliver high-quality cancer care without using existing approaches, tools, and resources to address patients' psychosocial health needs. All patients with cancer and their families should expect and receive cancer care that ensures the provision of appropriate psychosocial health services. Cancer Care for the Whole Patient recommends actions that oncology providers, health policy makers, educators, health insurers, health planners, researchers and research sponsors, and consumer advocates should undertake to ensure that this standard is met. |
| childhood cancer survivor study: Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer National Cancer Policy Forum, Board on Health Care Services, A LIVESTRONG and Institute of Medicine Workshop, Institute of Medicine, 2014-05-18 Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer is the summary of a workshop convened by the Institute of Medicine's National Cancer Policy Forum in July 2013 to facilitate discussion about gaps and challenges in caring for adolescent and young adult cancer patients and potential strategies and actions to improve the quality of their care. The workshop featured invited presentations from clinicians and other advocates working to improve the care and outcomes for the adolescent and young adult population with cancer. Cancer is the leading disease-related cause of death in adolescents and young adults. Each year nearly 70,000 people between the ages of 15 and 39 are diagnosed with cancer, approximately 8 times more than children under age 15. This population faces a variety of unique short- and long-term health and psychosocial issues, such as difficulty reentering school, the workforce, or the dating scene; problems with infertility; cardiac, pulmonary, or other treatment repercussions; and secondary malignancies. Survivors are also at increased risk for psychiatric conditions such as anxiety, depression, substance abuse, and suicide and may have difficulty acquiring health insurance and paying for needed care. Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer discusses a variety of topics important to adolescent and young adult patients with cancer, including the ways in which cancers affecting this group differ from cancers in other age groups and what that implies about the best treatments for these cancer patients. This report identifies gaps and challenges in providing optimal care to adolescent and young adult patients with cancer and to discuss potential strategies and actions to address them. |
| childhood cancer survivor study: Locus of Control H. M. Lefcourt, 2014-06-03 First published in 1982. Since the publication of the first edition of this book, much research has been reported that is pertinent to if not directly concerned with the locus of control construct. The purpose of this new edition is to help researchers keep abreast of the widespread developments in this field while retaining an understanding of the sources and major assumptions from which this research endeavour has evolved. |
| childhood cancer survivor study: My Stroke of Insight Jill Bolte Taylor, 2008-05-12 Transformative...[Taylor's] experience...will shatter [your] own perception of the world.—ABC News The astonishing New York Times bestseller that chronicles how a brain scientist's own stroke led to enlightenment On December 10, 1996, Jill Bolte Taylor, a thirty-seven- year-old Harvard-trained brain scientist experienced a massive stroke in the left hemisphere of her brain. As she observed her mind deteriorate to the point that she could not walk, talk, read, write, or recall any of her life-all within four hours-Taylor alternated between the euphoria of the intuitive and kinesthetic right brain, in which she felt a sense of complete well-being and peace, and the logical, sequential left brain, which recognized she was having a stroke and enabled her to seek help before she was completely lost. It would take her eight years to fully recover. For Taylor, her stroke was a blessing and a revelation. It taught her that by stepping to the right of our left brains, we can uncover feelings of well-being that are often sidelined by brain chatter. Reaching wide audiences through her talk at the Technology, Entertainment, Design (TED) conference and her appearance on Oprah's online Soul Series, Taylor provides a valuable recovery guide for those touched by brain injury and an inspiring testimony that inner peace is accessible to anyone. |
| childhood cancer survivor study: Brook's Clinical Pediatric Endocrinology Mehul T. Dattani, Charles G. D. Brook, 2019-11-04 The seventh edition of Brook's Clinical Pediatric Endocrinology has been compiled by an experienced editorial team and internationally renowned contributors; it presents basic science and clinical management of endocrine disorders for all involved in the care of children and adolescents. It provides treatments for a variety of hormonal diseases, including diabetes and hypoglycaemia, growth problems, thyroid disease and disorders of puberty, sexual differentiation, calcium metabolism, steroid metabolism and hypopituitarism. |
| childhood cancer survivor study: Pediatric Psycho-oncology Lori Wiener, Maryland Pao, Anne E. Kazak, Mary Jo Kupst, Andrea Farkas Patenaude, Robert J. Arceci, 2015 Pediatric Psycho-Oncology is a comprehensive handbook that provides best practice models for the management of psychological, cognitive, and social outcomes of adolescents living with cancer and their families. Chapters cover a wide range of topics including psychological aspects of particular pediatric cancers and their treatments, how to talk to a child and family at critical times during the disease course, genetic testing, individual, family, educational, psychological and psychiatric interventions, and caring for international patients . Each chapter highlights the necessity of embracing an interdisciplinary approach to ensure that each child has the best options for living with cancer and, when cure is not possible, that death occurs with as much dignity as possible for the child and family. An extensive resource section is appended to provide information on written, online, video, community, national and international services and programs. This book features contributions from experts designed to help clinicians review, anticipate and respond to emotional issues that often arise in the context of treating pediatric cancer patients. Numerous cross-references and succinct tables and figures make this concise reference easy to use. Pediatric Psycho-Oncology is an ideal resource for helping pediatric oncologists and nurses recognize when it may be best to refer patients to their mental health colleagues and for those who are establishing pediatric oncology services or adding psychosocial components to existing clinics. |
| childhood cancer survivor study: The Oxford Handbook of Traumatic Stress Disorders J. Gayle Beck, Lillian and Morrie Moss Chair of Excellence Department of Psychology J Gayle Beck, Associate Professor of Psychiatry Denise M Sloan, Denise M. Sloan, 2022 In the second edition of this handbook, experts on traumatic stress have contributed chapters on topics spanning classification, epidemiology and special populations, theory, assessment, prevention/early intervention, treatment, and dissemination and treatment. This expanded, updated volume contains 39 chapters which provide research updates, along with highlighting areas that need continued clarification through additional research. The handbook provides a valuable resource for clinicians and investigators with interest in traumatic stress disorders-- |
| childhood cancer survivor study: Paediatric Haematology and Oncology Simon Bailey, Rod Skinner, 2010 While survival rates for children with cancer have increased in recent times, the increased use of more aggressive therapies has brought with it significant adverse effects. Therefore, the aim of pediatric oncologists has become to achieve cure at least cost by the appropriate reduction of the intensity and/or duration of treatment in carefully identified good prognosis patients. By comprehensively covering these issues, this handbook aims to provide residents in pediatric hematology and oncology, as well as staff in related medical or other healthcare disciplines, with an easily accessible source of information about the basic principles of childhood cancer and leukemia, as well as much of the more detailed specialist knowledge required to care for children with these conditions. Divided into sections to allow quick access to the necessary information, the handbook covers general principles of diagnosis and treatment, short and long term care, and oncological emergencies before moving on to chapters on specific disease. Normal values and useful websites are also included for reference. |
| childhood cancer survivor study: Decision Making in Health and Medicine M. G. Myriam Hunink, Milton C. Weinstein, Eve Wittenberg, 2014-10-16 A guide for everyone involved in medical decision making to plot a clear course through complex and conflicting benefits and risks. |
| childhood cancer survivor study: A Clinical Guide to Pediatric Sleep Jodi A. Mindell, Judith A. Owens, 2010 Written for busy primary care practitioners, this book is a practical clinical guide to common pediatric sleep disorders and their treatment. Information is organized by specific disorder and by the most frequent presenting complaints. Symptom-based algorithms will enable practitioners to evaluate sleep complaints in a stepwise manner. Other features include symptom checklists for specific disorders and chapters on sleep problems in special populations. Appendices provide practical tools for screening for sleep problems, evaluating sleep studies, and counseling families. This edition includes updated ICSD-2 and ICD-10 diagnostic criteria and new and revised American Academy of Sleep Medicine Standards of Practice guidelines. Other highlights include new chapters on sleep hygiene and sleep enuresis, updated and expanded chapters on all sleep disorders, and up-to-date information on sleep medications and sleep in special populations. A companion Website will offer parent handouts for each age group and each sleep disorder, as well as screening questionnaires and sleep diaries. |
| childhood cancer survivor study: First Survivor Mark Unger, 2018-01-03 This is a real life thriller about a family's battle to save their son from a zero chance of survival diagnosis. With the world's best doctors and the advocacy of his parents, Louis Unger would fight the battle for his young life. His grit and incredible attitude led to a breakthrough that would change how cancer is treated today. This is not a medical journal or a how-to guide. It is a true page-turner that gives you a front row seat to a miraculous story of courage, inspiration and determination.All proceeds from this book will go to the Carrot Seed Foundation where they will be used to fund Neuroblastoma clinical trials and support the children and families who are stricken by this disease. |
| childhood cancer survivor study: The Descriptive Phenomenological Method in Psychology Amedeo Giorgi, 2009 This comprehensive work from one of the leading thinkers in humanistic psychology provides a thorough discussion of the phenomenological foundations for qualitative research in psychology. Amedeo Giorgi's examination operates out of the intersection of phenomenological philosophy, science, and psychology; such a multidisciplinary approach allows him to challenge several long-standing assumptions about the practice of psychology. Giorgi asserts that empiricism is not the best philosophy for grounding the science of psychology--rather, the broader phenomenological theory of science permits more adequate psychological development. Giorgi draws from Husserl's philosophical principles the reasons for conducting research in psychology, and then offers practical steps for applying a phenomenological method and real examples of applications of the method. In fact, Giorgi proposes a method that is theoretically grounded in phenomenological philosophy and yet treats empirically derived data. This is a rigorous but open qualitative research method that is tolerant of pararational givens as well as one that is supportive of rational criteria. The analyses and methods presented in Phenomenological Method in Psychology will be attractive to psychologists, phenomenologists, and researchers involved in qualitative research throughout social and human science disciplines. |
| childhood cancer survivor study: Survival of Cancer Patients in Europe F. Berrino, International Agency for Research on Cancer, 1995 This book is a compilation and discussion of data on the survival of cancer patients in 12 European countries. Measures of incidence, survival and mortality are critical to the interpretation of data on progress in the fight against cancer, and in the evaluation of the overall effectiveness of cancer control programmes. Randomized controlled clinical trials have shown many modern protocols for cancer treatment to be more effective than earlier treatments, but until now, comparable population-based survival figures have raraly been available. EUROCARE is a concerted action among European cancer registries, aimed at estimating and comparing the survival of cancer patients in different European populations. The rationale behind this project is to optimize the comparability of survival data by using an agreed and standard definition of the diseases for which survival is to be compared, and by taking due account of basic demographic variables. The EUROCARE Working Group succeeded in collecting, checking and editing data on cancer survival from 30 cancer registries in 12 countries, and established a database covering some 800,000 cancer patients in the period 1978-85 and followed up to the end of 1990. This database forms the raw material for this monograph. |
| childhood cancer survivor study: Children With Cancer Christine Eiser, 2004-04-12 Cancer is a very rare disease in children. There have been impressive gains in survival in recent years, and these have been achieved through the use of chemotherapy and national and international clinical trials. The diagnosis of cancer in a child imposes considerable stress on the whole family. In the immediate time after diagnosis, parents must learn about the disease and its treatment, explain what is happening to the child, and make arrangements for the care of other children in the family. For the child, treatment is associated with many side effects depending on the specific drugs used. In addition, the child is prone to infection and therefore is likely to miss a lot of school and other activities. For all these reasons, physicians and families have become aware that cancer has huge implications for the quality of the child's life. This book is an attempt to describe how quality of life is affected at different stages of the disease process. Comprehensive reviews are provided of the impact on the child's physical activity, social life, and school and educational achievements. Special consideration is given to children with leukemia (one of the more common cancers) and brain tumors. Cancer does not just affect the child but every member of the family. Consequently there is coverage of the effects on parents and also healthy brothers and sisters. To the extent that improvements in survival have been achieved by national and international collaboration between clinicians, it is concluded that efforts to improve the quality of these children's lives is dependent on collaboration between clinicians, nurses, and behavioral scientists at national and international levels. This book should provide an impetus for such collaboration. |
| childhood cancer survivor study: Basic Clinical Radiobiology Michael C. Joiner, Albert J. van der Kogel, 2018-08-28 Basic Clinical Radiobiology is a concise but comprehensive textbook setting out the essentials of the science and clinical application of radiobiology for those seeking accreditation in radiation oncology, clinical radiation physics, and radiation technology. Fully revised and updated to keep abreast of current developments in radiation biology and radiation oncology, this fifth edition continues to present in an interesting way the biological basis of radiation therapy, discussing the basic principles and significant developments that underlie the latest attempts to improve the radiotherapeutic management of cancer. This new edition is highly illustrated with attractive 2-colour presentation and now includes new chapters on stem cells, tissue response and the convergence of radiotherapy, radiobiology, and physics. It will be invaluable for FRCR (clinical oncology) and equivalent candidates, SpRs (and equivalent) in radiation oncology, practicing radiation oncologists and radiotherapists, as well as radiobiologists and radiotherapy physicists. |
| childhood cancer survivor study: Implementing Cancer Survivorship Care Planning The National Cancer Institute, The Lance Armstrong Foundation, Institute of Medicine, 2006-12-14 One of the key recommendations of the joint IOM and NRC book, From Cancer Patient to Cancer Survivor: Lost in Transition, is that patients completing their primary treatment for cancer be given a summary of their treatment and a comprehensive plan for follow-up. This book answers practical questions about how this Survivorship Care Plan, including what exactly it should contain, who will be responsible for creating and discussing it, implementation strategies, and anticipated barriers and challenges. |
Childhood | Britannica
childhood, period of the human lifespan between infancy and adolescence, extending from ages 1–2 to 12–13. See child development . This article was most recently revised and updated by …
CHILDHOOD Definition & Meaning - Merriam-Webster
The meaning of CHILDHOOD is the state or period of being a child. How to use childhood in a sentence.
Child Development | Psychology Today
Understanding the forms childhood abuse can take, why its effects run so deep, and how to begin healing through therapy is a critical step for those seeking restoration.
What is Childhood?
Childhood is a state or period of being a child. Going by the biological yardstick, a child is a person whose life stage is between birth and puberty. In other words, the period of …
CHILDHOOD | English meaning - Cambridge Dictionary
Childhood is not always a happy time. childhood My childhood was spent moving from place to place as my father was in the army. boyhood He remembered his boyhood as an idyllic period …
A Detailed Definition Of Childhood - BetterHelp
Feb 27, 2025 · Childhood means different things to different people depending on history, culture, and experience. According to Brittanica.com, childhood is the "period of the human lifespan …
Ages & Stages Of Child Development | Birth - Teen ...
Children go through distinct periods of development as they grow from infants to young adults. During each of these stages, multiple changes in the development of the brain are taking …
CHILDHOOD Definition & Meaning - Dictionary.com
the state or period of being a child. the childhood of the human race. “Collins English Dictionary — Complete & Unabridged” 2012 Digital Edition © William Collins Sons & Co. Ltd. 1979, 1986 © …
Understanding Childhood: Definitions, Perspectives, and ...
Jun 15, 2024 · Understanding the concept of childhood is far from simple, and it’s an evolving journey that involves philosophical, psychological, and sociological exploration. In this post, …
APA Dictionary of Psychology
Apr 19, 2018 · the period between 3 or 4 years of age and about 7 years of age. In this context, childhood represents the period after weaning and before children can fend for themselves. …
Childhood | Britannica
childhood, period of the human lifespan between infancy and adolescence, extending from ages 1–2 to 12–13. See child development . This article was most recently revised and updated by …
CHILDHOOD Definition & Meaning - Merriam-Webster
The meaning of CHILDHOOD is the state or period of being a child. How to use childhood in a sentence.
Child Development | Psychology Today
Understanding the forms childhood abuse can take, why its effects run so deep, and how to begin healing through therapy is a critical step for those seeking restoration.
What is Childhood?
Childhood is a state or period of being a child. Going by the biological yardstick, a child is a person whose life stage is between birth and puberty. In other words, the period of …
CHILDHOOD | English meaning - Cambridge Dictionary
Childhood is not always a happy time. childhood My childhood was spent moving from place to place as my father was in the army. boyhood He remembered his boyhood as an idyllic period …
A Detailed Definition Of Childhood - BetterHelp
Feb 27, 2025 · Childhood means different things to different people depending on history, culture, and experience. According to Brittanica.com, childhood is the "period of the human lifespan …
Ages & Stages Of Child Development | Birth - Teen ...
Children go through distinct periods of development as they grow from infants to young adults. During each of these stages, multiple changes in the development of the brain are taking …
CHILDHOOD Definition & Meaning - Dictionary.com
the state or period of being a child. the childhood of the human race. “Collins English Dictionary — Complete & Unabridged” 2012 Digital Edition © William Collins Sons & Co. Ltd. 1979, 1986 © …
Understanding Childhood: Definitions, Perspectives, and ...
Jun 15, 2024 · Understanding the concept of childhood is far from simple, and it’s an evolving journey that involves philosophical, psychological, and sociological exploration. In this post, …
APA Dictionary of Psychology
Apr 19, 2018 · the period between 3 or 4 years of age and about 7 years of age. In this context, childhood represents the period after weaning and before children can fend for themselves. …
