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| brain tumor guide for the newly diagnosed: Navigating Life with a Brain Tumor Lynne P. Taylor, Alyx B. Porter Umphrey, Diane Richard, 2012-12-06 Navigating Life with a Brain Tumor is a guide for anyone affected by brain tumors and their associated conditions-patients, family members, friends, and caregivers. Providing readily accessible information and real-world encouragement to people living with primary and metastatic brain tumors and their caregivers, this book discusses the basics of brain tumors, types of tumors, management of different tumors, related symptoms, treatments and side effects, the role of medical team members, and coping strategies from initial diagnosis throughout the course of the illness. At the same time, it also offers practical suggestions on symptom management and lifestyle modification, as well as real-life anecdotes and advice from both patients and family members and friends who are experiencing this diagnosis. |
| brain tumor guide for the newly diagnosed: Brain Tumor Immunotherapy Linda M. Liau, Donald P. Becker, Timothy F. Cloughesy, Darell D. Bigner, 2000-11-10 An authoritative panel of researchers and clinicians critically reviews the entire field to provide a comprehensive guide to modern brain tumor immunotherapy and thereby enhance future research in this area. The contributors detail many of the key laboratory experiments and clinical protocols that are currently being investigated, integrate the available information from previous and ongoing research, and help define the current status of the field. Topics range from adoptive cellular and antibody-mediated immunotherapy of brain tumors to tumor vaccines and related strategies, and include many vanguard experimental strategies and immunological techniques for studying brain tumor immunotherapy. Cutting-edge and comprehensive, Brain Tumor Immunotherapy brings together all the important recent advances in our understanding of central nervous system tumor immunology and illustrates in powerful detail the many new applications now harnessing the immune response for brain tumor therapeutics. |
| brain tumor guide for the newly diagnosed: Living with a Brain Tumor Peter Black, 2006-10-31 Each year, 100,000 people in the United States are diagnosed with a brain tumor. With his new book, Dr. Peter Black fills a gap in the lay readership, providing an accessible medical resource for adult patients and their families. Dr. Black, who has operated on more than 3,000 patients with brain tumors, is uniquely qualified to discuss both clinical treatment of and research into brain tumors. This invaluable resource tells patients everything they need to know to understand and address their diagnosis, in a four-part structure: • What is a Brain Tumor? provides straightforward information about how brain tumors are diagnosed, the different types of tumors and how they develop, and where to go for treatment. • Coping with Shock addresses the emotional impact of the diagnosis on the patient and their family, offering specific advice on support groups and how to managing work and finances during your treatment. • Treatment options outlines the complex array of available treatments in a sequential, logical, and thorough manner, enabling readers to make informed decisions. • Recovery describes how to deal with the aftermath, addressing issues ranging from physical scars to speech and occupational therapy. Dr. Black believes that more than half of brain tumor cases can be resolved with relatively minor side effects or none at all. Equipped with this informative book, patients and their family and friends can learn how to fight brain tumors effectively, putting them on the path to wellness. |
| brain tumor guide for the newly diagnosed: They Call Me "The Miracle": The Carmen Rice Story Randy R. Harris, 2021-10-26 Cancer is a major worldwide public health problem and is the second leading cause of death in the United States. In 2018, there were seventeen million new cancer cases and 9.5 million cancer deaths worldwide. Seemingly, everyone has been affected by or knows of someone who is affected by the disease. In 2004, doctors discovered that Carmen Rice had a stage 4 Glioblastoma Multiforme brain tumor, one of the deadliest of all cancers—the same cancer which killed John McCain, Edward Kennedy, and Beau Biden. After being diagnosed with a glioblastoma tumor, twenty-nine-year-old Brittany Maynard made headline news when she moved to Oregon to die with dignity. Carmen’s doctor gave her six months to live, but with her faith in God and tenacious spirit, Carmen just kept beating the odds. After all these years, Carmen is “off the map” and into uncharted territory. They Call Me The Miracle is her story. |
| brain tumor guide for the newly diagnosed: Navigating Glioblastoma Sally Connolly, 2020-07-10 A stale marriage. A deadly diagnosis. For Sally Connolly, three years of struggle followed her husband Peter's surgery for terminal brain cancer at age 61. Choosing treatment options that interfered least with his career, Peter focused his limited energy on work, with little left for his family, further straining the marriage during his remaining days. Connolly's clear-eyed and affecting memoir recounts their wrangling over gender roles, money management, domestic decisions and lifestyle changes. Through their traumatic journey, they find humor and comfort in unexpected places. |
| brain tumor guide for the newly diagnosed: Glioblastoma - a Guide for Patients and Loved Ones Gideon Burrows, 2017-09-15 Glioblastoma and anaplastic astrocytoma are two of the most common form of brain tumours in adults. Too often they can be life changing, even life limiting for patients, wreaking devastation on their families. This readable, moving and non technical guide is your comprehensive patient focussed guide to these obstinate brain cancers. It covers everything from getting an accurate diagnosis, to dealing with the physical, mental and emotional impact of the disease. From treatment options and how to cope with their side effects, to newly developing techniques and future research. This book presents an honest and realistic picture, with a personal approach. Featuring dozens of personal testimonies from those with these high grade brain tumours and their loved ones, the book offers information, reassurance and support on these, the most complex of brain tumours. |
| brain tumor guide for the newly diagnosed: My Brain Tumour Adventures Sharon Dempsey, 2002-11 Queen's Univ., UK. Consumer text written for two- to seven-year-old children. Allows children and adults to come to terms with radiotherapy, chemotherapy, and the side effects of medicines through the use of a fictional story. Landscape format. Softcover. |
| brain tumor guide for the newly diagnosed: Re-Irradiation: New Frontiers Carsten Nieder, Johannes Langendijk, 2016-10-25 This book, now in its second edition, provides a comprehensive overview of current re-irradiation strategies, with detailed discussion of re-irradiation methods, technical aspects, the role of combined therapy with anticancer drugs and hyperthermia, and normal tissue tolerance. In addition, disease specific chapters document recent clinical results and future research directions. All chapters from the first edition have been revised and updated to take account of the latest developments and research findings, including those from prospective studies. Due attention is paid to the exciting developments in the fields of proton irradiation and frameless image-guided ablative radiotherapy. The book documents fully how refined combined modality approaches and significant technical advances in radiation treatment planning and delivery have facilitated the re-irradiation of previously exposed volumes, allowing both palliative and curative approaches to be pursued at various disease sites. Professionals involved in radiation treatment planning and multimodal oncology treatment will find it to be an invaluable aid in understanding the benefits and limitations of re-irradiation and in designing prospective trials. |
| brain tumor guide for the newly diagnosed: Navigating Breast Cancer Shockney, 2010-03-05 In this newly updated and revised edition of Navigating Breast Cancer: A Guide for the Newly Diagnosed, Second Edition, author Lillie Shockney empowers breast cancer patients and their families by providing authoritative, easy-to-follow information about each step of treatment, helping women to make informed decisions about their care. Armed with this invaluable book, breast cancer patients will be well prepared for each phase of therapy, and perhaps most importantly, will learn how to continue to work and live life while receiving treatment. This outstanding resource provides breast cancer patients with the essential tools they need to cope with symptoms and to navigate the maze of modern treatment options. |
| brain tumor guide for the newly diagnosed: Brain Tumor Imaging Elke Hattingen, Ulrich Pilatus, 2015-09-02 This book describes the basics, the challenges and the limitations of state of the art brain tumor imaging and examines in detail its impact on diagnosis and treatment monitoring. It opens with an introduction to the clinically relevant physical principles of brain imaging. Since MR methodology plays a crucial role in brain imaging, the fundamental aspects of MR spectroscopy, MR perfusion and diffusion-weighted MR methods are described, focusing on the specific demands of brain tumor imaging. The potential and the limits of new imaging methodology are carefully addressed and compared to conventional MR imaging. In the main part of the book, the most important imaging criteria for the differential diagnosis of solid and necrotic brain tumors are delineated and illustrated in examples. A closing section is devoted to the use of MR methods for the monitoring of brain tumor therapy. The book is intended for radiologists, neurologists, neurosurgeons, oncologists and other scientists in the biomedical field with an interest in neuro-oncology. |
| brain tumor guide for the newly diagnosed: Brain Tumours Gideon Burrows, 2013-11 Slow growing brain tumours change lives forever. This readable and moving non-technical guide is about living with a low grade tumour, a diagnosis given to thousands of people every year. Featuring dozens of personal testimonies from those dealing daily with the impact of their tumours, this book offers information, support and reassurance for those with a low grade brain tumour, their family and friends. Father of two Gideon Burrows was told he had an incurable and inoperable low grade glioma brain tumour aged just 35. He discovered information was scarce for those with slow growing brain tumours and about the particular challenges patients like him face. In this book, he shares his own experiences and those of many others as they came to understand their diagnosis and learned how to live low grade. Chapters: In it for the long haul, Symptoms and signs, Life challenges, Family and friends, Getting medical, Treatment, Prognosis, Reasons to be cheerful, Resources. |
| brain tumor guide for the newly diagnosed: Brain Tumors in Children Amar Gajjar, Gregory H. Reaman, Judy M. Racadio, Franklin O. Smith, 2018-09-29 This book is a comprehensive and up-to-date compendium of all aspects of brain tumors in children. After introductory chapters on the epidemiology of brain tumors, the book will provide readers with state-of-the art chapters on the principals of radiation therapy, neurosurgery and neuroimaging. Subsequent chapters discuss the biology and treatment of specific types of brain tumors. The concluding chapters present critical information relevant to survivorship, neurocognitive and other late effects, and the global challenges to better diagnosis and treatment of brain tumors in children. This book is co-authored by experts in the treatment of pediatric brain tumors. All of the authors are internationally recognized authorities and they offer an evidence-based consensus on the biology and treatment of brain tumors. This handbook has far-reaching applicability to the clinical diagnosis and management of brain tumors in children and will prove valuable to specialists, generalists and trainees alike. |
| brain tumor guide for the newly diagnosed: Childhood Cancer Survivors Nancy Keene, Wendy Hobbie, Kathy Ruccione, 2014-03-01 More than 325,000 children, teens, and adults in the United States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children can affect growing bodies and developing minds. If survivors know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop. The third edition of Childhood Cancer Survivors charts the territory for survivors by providing state-of-the-art information about: Medical late effects from treatment Emotional aspects of surviving cancer Schedules for follow-up care Challenges in the heath-care system Lifestyle choices to maximize health Discrimination in employment or insurance Woven throughout the text are stories from more than 100 survivors and parents. Authors Keene, Hobbie, and Ruccione are experts in the field of childhood cancer. Keene is the mother of a survivor of childhood leukemia and the author of several books including Childhood Leukemia, Childhood Cancer, Educating the Child with Cancer, and Chemo, Craziness & Comfort. Hobbie is Associate Director of the Cancer Survivorship Program at Children's Hospital of Philadelphia. Ruccione is Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Children's Center for Cancer and Blood Diseases at Children's Hospital Los Angeles. |
| brain tumor guide for the newly diagnosed: A Statistic of One Stephen Hatrak, 2012-05 A Statistic of One: My Walk with Glioblastoma Multiforme traces Stephen Hatrak's life from his diagnosis of glioblastoma multiforme, the deadliest of malignant brain tumors, to the present. He chronicles the trials and tribulations he faced and the losses he suffered along his journey. Faith and inner strength are formidable allies in overcoming any tragedy in one's life, and they played vital roles in his struggle. He was told from the start that the he might have twelve months to live; even so, he defi ed the odds and, six years later, is telling his own story. Despite the dire statistics associated with a diagnosis of glioblastoma, there are several stories of long-term survival; these stories gave him hope that this cancer could be tamed. To overcome this challenge in his life, he had to believe in himself and fi nd his inner sixth sense to strengthen his resolve. Along the way, he learned that life with brain cancer could be tough, but that he could be even tougher. What cancer cannot do....separate me from my soul, squash my spirit, and stop the sun from rising in the east and setting in the west; creating new tomorrows and new opportunities. A Statistic of One is an uplifting story of faith and perseverance; how we cope with challenge will determine how we move forward and live life to its fullest. |
| brain tumor guide for the newly diagnosed: Lung Cancer Walter J. Scott, 2012-01-02 What is my prognosis? What are my treatment options? Which therapies would be the most effective for my stage of lung cancer? These and other frequently asked questions are addressed in this crucial reference designed to help patients educate themselves and obtain the best possible treatments. The completely revised second edition has been updated to include a discussion of the movement towards customized chemotherapy; treatment options for early-stage lung cancer including minimally invasive surgery; and the most promising treatments, among them multimodality therapy—a combination of surgery, chemotherapy, and radiation. Dr. Scott also surveys tests for early detection of lung cancer, talks about the importance of cancer staging, examines alternative treatments, and offers advice on coping with emotions such as smoker's guilt. |
| brain tumor guide for the newly diagnosed: A Mighty Boy Sarah Pullen, 2017-08-17 Silas is ten years old when the headaches start. When the diagnosis arrives, his parents are told they have until Christmas... maybe. And so begins Sarah Pullen’s battle to save her son, against doubting doctors and insurmountable odds. This story about love and loss traces her family’s journey from that first day at the hospital, battling a tumour they named ‘Bob’, through Silas’s death and beyond. This profoundly moving and honest account shows that it is possible to find the strength for a journey that no mother should ever go on; that it is possible to find a new way to live, even when death is knocking on the door. It is about confronting grief – raw, ugly, incomprehensible grief. It is a book about wrapping a small boy in love, but still letting him get grubby knees. It is about learning to savour every moment of the here and now, yet also learning to let go. At its heart, A Mighty Boy is a story of the love between a mother and a son. It is a book about seizing the moment and somehow managing to survive the death of a child. But most of all it is a book about a small, mighty, smiling boy. |
| brain tumor guide for the newly diagnosed: When Tumor Is the Rumor and Cancer Is the Answer Kevin P. Ryan, MD FACP COL USAF (ret), 2013-03 Superb! This thoroughly delightful book explores, explains, and puts in context our biggest fear- our own mortality! The very word Cancer evokes a primal fear that we are all mortal and will, at some point, die. My own experience, on a personal level with cancer, access ports, chemotherapy, radiation therapy, and major surgery was very sobering! Dr Kevin Ryan has given us all a new perspective on how to live with and conquer our biggest fear! This book is a must read for anyone living with cancer, their families, and the entire treatment community. When Tumor is the Rumor, and Cancer is the Answer will help each of us to triumph over this experience, regardless of the outcome! -LT. Gen PK Carlton Jr. Surgeon General USAF (ret) A great cancer book should reduce anxiety with authority and comprehensive information helping those confronted marshal their internal resources and conquer their fears. Does such a book exist? You are about to read it -Maurie Markman MD FACP Senior Vice President of Clinical Affairs & National Director of Medical Oncology Cancer Treatment Centers Of America. Senior Vice President of Clinical Affairs and National Director of Medical Oncology, Cancer Treatment Centers Of America. Former Professor and Vice President of Clinical Research and Chairman of the Department of Gynecologic Medical Oncology, MD Anderson Cancer Center. Former Chairman of the Department of Hematology/Oncology and Director of the Taussig Cancer Center at the Cleveland Clinic Foundation. Former Vice-Chair, Department of Medicine, Memorial Sloan Kettering Cancer Center, New York City, New York |
| brain tumor guide for the newly diagnosed: Surviving "Terminal" Cancer Ben A. Williams, 2002 A new guide to the often concealed radical options for cancer therapy argues that while news may not be good, the prognosis is not neccessarilly fatal. Original. |
| brain tumor guide for the newly diagnosed: Hell in the Head David Douglas Shannon, 2012-07-01 He got sucker-punched, blindsided with something that only happens to other people. Actor David Shannon had a brain tumor. It was called an Acoustic Neuroma. In late 2007, he had surgery to have it removed. All should have gone well. It didn't. Gradually over the next two years, Shannon made one disturbing discovery after another that left his acting career and his former life in ruin. Hell in the Head is his story. With a knack for story-telling, Shannon takes us along on his medical misadventure with irreverent wit. As he weaves his way through his newly found post-surgery world, he shares heart-rending losses and his dashed hopes for recovery as well as stories of achievement and inspiration. From learning the bitter truth to running a half marathon to meeting Crookedsmile and others facing the same ordeal, Shannon tells the good and the ugly with the same wry humor that will have you laughing and crying at the same time. In the end, after a three-year-ride on a rollercoaster of emotional chaos, he presents an advocacy for improved care and counseling for Acoustic Neuroma patients. Hell in the Head is a story of wit and inspiration for all readers and a must read for Acoustic Neuroma patients and posties. |
| brain tumor guide for the newly diagnosed: The Human Hypothalamus Dick F. Swaab, Ruud M. Buijs, Paul J. Lucassen, Ahmad Salehi, Felix Kreier, 2021-07-04 The Human Hypothalamus: Neuroendocrine Disorders, Volume 181 in the Handbook of Clinical Neurology series, provides comprehensive summaries of recent research on the brain and nervous system as they relate to clinical neurology. This volume summarizes the role of the hypothalamus in neuroendocrine disorders, identifying the mechanism of action, disorder etiology, and best practices for assessment and treatment. Disorders covered include pituitary hypothalamic disorders of development and growth, hypothalamic tumor related disorders, hypothalamic autoimmune disorders and infection, disorders of vasopressin, water and sodium homeostasis, eating disorders, and gonadotropic hormone regulation disorders. - Discusses the importance of the hypothalamus in human growth and development - Reviews hypothalamic related tumors, as well as pituitary, autoimmune, vasopressin and hormone regulation disorders - Includes metabolic and eating disorders - Identifies mechanisms of disease action and etiology - Provides best practice information for assessment and treatment |
| brain tumor guide for the newly diagnosed: Epilepsy and Brain Tumors Herbert B. Newton, Marta Maschio, 2015-03-06 Patients with brain tumor-related epilepsy (BTRE) suffer from two serious pathologies simultaneously – a brain tumor and a secondary form of epilepsy. Although there has been remarkable progress in BTRE research in recent years, it remains an on-going challenge for clinicians and continues to stimulate much debate in the scientific community. This volume is the first to be completely dedicated to BTRE, and in doing so it explores issues faced by the health care team as well as some of the novel and promising directions that future research may take. Epilepsy and Brain Tumors is not only a complete reference on BTRE but also a practical guide based on clinical experiences, with a comprehensive collection of presentations from international experts who share some of the latest discoveries and their approaches to tackling a wide range of difficult and complex issues. - Includes coverage of epidemiology, pathology and treatment of both primary and metastatic brain tumors - Offers additional insight into supportive care, incidence in children, focal epileptogenesis, clinical evaluation, antiepileptic drugs, surgical treatment, cognitive rehabilitation, and more - Chapters authored and edited by leaders in the field around the globe – the broadest, most expert coverage available |
| brain tumor guide for the newly diagnosed: Intracranial Germ Cell Tumors Yutaka Sawamura, Hiroki Shirato, Nicolas de Tribolet, 2012-12-06 Intracranial germ cell tumors are a group of uncommon neoplasms of the central nervous system. The clinical features and natural history of these lesions are quite unique and variable. While intracranial germ cell tumors have been a fascination to neurooncologists for decades, the relatively small number of patients seen in any single institution has hampered the important clinical investigation that is so needed. This text is complete with detailed information concerning the epidemiology, pathology, oncological biology, clinical findings, radiology, and treatment options including surgical strategy, radiotherapy, and chemotherapy for this heterogeneous group of neoplasms. The ongoing clinical trials concerning the optimization of therapy are efficiently summarized. An important final segment addresses the late sequelae of therapy which is of great significance since the majority suffering from these tumors are young patients. This first and only book on intracranial germ cell tumors includes excellent and comprehensive data sheets, illustrations, and radiograms. It provides a detailed and outstanding reference source for physicians taking care of patients with intracranial germ cell tumors, and will be a very welcome edition to their reference libraries. |
| brain tumor guide for the newly diagnosed: Brain and Human Body Modeling 2020 Sergey N. Makarov, 2021 The 41st Annual International Conference of the IEEE EMBS, took place between July 23 and 27, 2019, in Berlin, Germany. The focus was on Biomedical engineering ranging from wellness to intensive care. This conference provided an opportunity for researchers from academia and industry to discuss a variety of topics relevant to EMBS and hosted the 4th Annual Invited Session on Computational Human Models. At this session, a bevy of research related to the development of human phantoms was presented, together with a substantial variety of practical applications explored through simulation. |
| brain tumor guide for the newly diagnosed: Forever Optimistic Robert S. Brams, 2021-06-29 Join a high-powered lawyer on his fight for life against brain cancer and his continuing efforts to remain Forever Optimistic. At age fifty-five, Robert S. Brams, a former college athlete, was in perfect health. Bob was blessed with a beautiful family, including his wife and two children. He had a circle of close friends and a hard-driving international law practice as partner at one of the most prestigious firms in Washington, DC. But after a fateful car accident, an MRI scan revealed a shadow on his brain that suddenly shattered his carefully constructed life. Brams was diagnosed with brain cancer—one of the most overwhelming challenges a person can face. What would the future hold for Brams and his family? Brams has been through six extraordinary years—four hospitals, two brain surgeries, a seizure, a stroke, a coma, life support, ICUs, radiation, chemotherapy, various rehab regimens, a hemophilia diagnosis, and countless MRIs. With all this, Brams’s insurers categorized him as a “Catastrophic Loss.” Despite all that’s happened, Brams is still in the fight, and he is determined to achieve an important purpose—to help beat brain cancer. While his legal career has ended, his continuing struggles have caused him to reprioritize his values and change his perspective on what really matters in life. Having stood at death’s door and now confronted with an uncertain prognosis, Brams’s insights on life, love, family, education, business, and finding your passion take on a distinctive power and clarity. Readers from every walk of life looking for inspiration and motivation will find it in Brams’s remarkable story. Struggles, setbacks, and failures in his youth were “no fun,” but with optimism and determination, Brams found his best path and ultimately succeeded. He reminds us that it’s not where you start, but rather where you finish. Inspiring, powerful, and eminently readable, Forever Optimistic: Fighting Brain Cancer, Finding Your Best Path, and Leading a Life With Purpose is by turns moving, humorous, and brimming with hard-won wisdom. Brams’s story is one of remarkable courage in the face of tragedy. Please support the brain cancer fight at www.1MBBC.com. |
| brain tumor guide for the newly diagnosed: WHO Classification of Tumours of the Central Nervous System David N. Louis, Hiroko Ohgaki, Otmar D. Wiestler, Webster K. Cavenee, 2016 WHO Classification of Tumours of the Central Nervous System is the revised fourth edition of the WHO series on histological and genetic typing of human tumors. This authoritative, concise reference book provides an international standard for oncologists and pathologists and will serve as an indispensable guide for use in the design of studies monitoring response to therapy and clinical outcome. Diagnostic criteria, pathological features, and associated genetic alterations are described in a disease-oriented manner. Sections on all recognized neoplasms and their variants include new ICD-O codes, epidemiology, clinical features, macroscopy, pathology, genetics, and prognosis and predictive factors. The book, prepared by 122 authors from 19 countries, contains more than 800 color images and tables, and more than 2800 references. This book is in the series commonly referred to as the Blue Book series. |
| brain tumor guide for the newly diagnosed: Irreversible Electroporation Boris Rubinsky, 2009-11-25 Non-thermal irreversible electroporation is a new minimally invasive surgical p- cedure with unique molecular selectivity attributes – in fact it may be considered the first clinical molecular surgery procedure. Non-thermal irreversible electro- ration is a molecular selective mode of cell ablation that employs brief electrical fields to produce nanoscale defects in the cell membrane, which can lead to cell death, without an effect on any of the other tissue molecules. The electrical fields can be produced through contact by insertion of electrode needles around the undesirable tissue and non-invasively by electromagnetic induction. This new - dition to the medical armamentarium requires the active involvement and is of interest to clinical physicians, medical researchers, mechanical engineers, che- cal engineers, electrical engineers, instrumentation designers, medical companies and many other fields and disciplines that were never exposed in their training to irreversible electroporation or to a similar concept. This edited book is designed to be a comprehensive introduction to the field of irreversible electroporation to those that were not exposed or trained in the field before and can also serve as a reference manual. Irreversible electroporation is broad and interdisciplinary. Therefore, we have made an attempt to cover every one of the various aspects of the field from an introductory basic level to state of the art. |
| brain tumor guide for the newly diagnosed: Pear Shaped Adam Blain, 2015-06-23 The true story of Adam Blain, a 44-year-old London lawyer and family man who one day, ends up in A&E after a series of headaches and consistent nausea. Expecting to be sent home with a packet of Paracetamol, he's shocked when harassed doctors are suddenly offering to buy him gourmet coffee. Worse still, the diagnosis of a late-stage brain tumour is made by his oncologist wife. So far, so not funny. Adam, however, is determined not to slide into defeatist misery, and approaches the saga of surgery and chemotherapy with a chirpy, irreverent black humour. What else can he do when every outing risks bits of his brain dripping out of his nose without warning? Wondering constantly what the pear-shaped part of his brain that's been removed is thinking, and whether it's having a better time than he is, Adam takes us through the myriad but necessary indignities inflicted on the brain cancer sufferer. A test, for example, on whether he can he determine whether pictures of faces are smiling? Something his wife is more than happy to help him revise for... The 'revision' involves me sitting in a pub or restaurant with Lu who makes a variety of different facial expressions at me covering the full range of human emotions. It is just like being back at kindergarten... Lu hides behind the menu whilst deciding upon and practising the next expression. She then sticks her head over the top of the menu and I give it my best shot. It would be more dignified for me if she didn't shout Peekaboo! each time. Or regular appointments with a psychiatrist to determine whether he's a suicide risk? I appreciate your lateral thinking to my problem. However, isn't suicide completely contrary to the point? I am scared of death and dying, I'm also undergoing horrendous treatments to (hopefully) delay my death. So why would I kill myself? What would be the point? That's been taken care of for me. The psychologist scribbled some stuff down and ticked a box. The box must have been: No suicide risk, or Suicide risk but in denial or most likely... Smart Arse. Even the bald patch left after the surgery, which resembles A pale pair of boxer shorts shaved into my head. Adam keeps himself going by looking for joy in everything - the radiation mask that resembles an S&M prop, or counting the amount of times he's greeted by a cotton bud being swabbed up his nose and then along the crease of a groin by a nurse to check for MRSA... While his wife encourages him to spend time with fellow cancer sufferers, with their spouses; diarrhea, constipation and catheters making for interesting dinner party conversation... Let me introduce you to my good friend, Mike. Funny story how we met. Anyway, we get on so well because we are both dying of exactly the same disease. Ain't that right, Micky? ... his old friends take him out on lads' weekends, their desire to show their mate a good time inhibited by middle-age, children and having, essentially, to babysit a grown man. Pear Shaped is a heartfelt, funny exploration of one man's real-life experiences as he undergoes treatment and simultaneously tries to seize the life he has left, all with the knowledge that a pear-shaped part of his brain is out there somewhere, fending for survival the same way he is. |
| brain tumor guide for the newly diagnosed: Pediatric Neuro-oncology Katrin Scheinemann, Eric Bouffet, 2015-03-26 “The editors...have done an outstanding job of presenting...complex information in a lucid manner – this book is a must-read for the global community of aspiring students and neuro-oncology practitioners.” Amar Gajjar, MD in the Foreword This is a succinct introduction to pediatric neuro-oncology. It summarizes the key advances in molecular biology that have helped transform this rapidly evolving field and provides up-to-date coverage of major and emerging treatment modalities as well as supportive care. Separate chapters present each kind of pediatric brain cancer and its diagnosis and treatment. As more children survive brain cancer, the importance of quality of life issues and helping survivors to cope with the neuropsychological impact and long-term effects of current therapies has come into sharper focus; these topics are also addressed in the book, as are palliative care and pediatric neuro-oncology in countries with limited resources. The book is aimed at trainees and practitioners who seek an up-to-date text in pediatric neuro-oncology that is both comprehensive and concise. |
| brain tumor guide for the newly diagnosed: When Breath Becomes Air (Indonesian Edition) Paul Kalanithi, 2016-10-06 Pada usia ketiga puluh enam, Paul Kalanithi merasa suratan nasibnya berjalan dengan begitu sempurna. Paul hampir saja menyelesaikan masa pelatihan luar biasa panjangnya sebagai ahli bedah saraf selama sepuluh tahun. Beberapa rumah sakit dan universitas ternama telah menawari posisi penting yang diimpikannya selama ini. Penghargaan nasional pun telah diraihnya. Dan kini, Paul hendak kembali menata ikatan pernikahannya yang merenggang, memenuhi peran sebagai sosok suami yang ia janjikan. Akan tetapi, secara tiba-tiba, kanker mencengkeram paru-parunya, melumpuhkan organ-organ penting dalam tubuhnya. Seluruh masa depan yang direncanakan Paul seketika menguap. Pada satu hari ia adalah seorang dokter yang menangani orang-orang yang sekarat, tetapi pada hari berikutnya, ia adalah pasien yang mencoba bertahan hidup. Apa yang membuat hidup berharga dan bermakna, mengingat semua akan sirna pada akhirnya? Apa yang Anda lakukan saat masa depan tak lagi menuntun pada cita-cita yang diidamkan, melainkan pada masa kini yang tanpa akhir? Apa artinya memiliki anak, merawat kehidupan baru saat kehidupan lain meredup? When Breath Becomes Air akan membawa kita bergelut pada pertanyaan-pertanyaan penting tentang hidup dan seberapa layak kita diberi pilihan untuk menjalani kehidupan. [Mizan, Bentang Pustaka, Memoar, Biografi, Kisah, Medis, Terjemahan, Indonesia] |
| brain tumor guide for the newly diagnosed: Brain Tumors Amit Agrawal, 2022-04-20 Brain tumors comprise a spectrum of histological patterns. Their presentation and management depend on their location, size, and grade of lesions. This book is a collection of high-quality research work from global experts on brain tumors, including meningiomas, and their treatment. |
| brain tumor guide for the newly diagnosed: Johns Hopkins Patients' Guide to Brain Cancer Deanna Glass Macenka, Alessandro Olivi, 2011-06-20 Johns Hopkins Patients' Guide to Brain Cancer is a concise, easy-to-follow “how to” guide that puts you on a path to wellness by explaining brain cancer treatment from start to finish. It guides you through the overwhelming maze of treatment decisions, simplifies the complicated schedule that lies ahead, and performs the task of putting together your plan of care in layman’s terms. Empower yourself with accurate, understandable information that will give you the ability to confidently participate in the decision making about your care and treatment. About the Series: Learning that you or someone you love has cancer is devastating, and feeling lost and powerless is a common immediate response. The Johns Hopkins Patients’ Guides are designed to alleviate your anxiety, empower you with information, and enable you to fully understand your treatment options. Each book in this series is dedicated to a specific type of cancer. The information is there to help lighten your burden and to assist you in becoming an active participant in your care. Cancer rarely allows us to take a diversion from life, and offering guidance on how to continue to live life while working hard on getting well is part of the outcome we hope to help you achieve. |
| brain tumor guide for the newly diagnosed: Childhood Cancer Honna Janes-Hodder, Nancy Keene, 2014-03-01 This second edition of the most complete parent guide available features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, financial issues, and communication. Woven among the medical details and the practical advice are the voices of parents and children who have lived with cancer and its treatments. As many parents know, advice from veteran parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel improves the quality of life for the whole family. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Parents who read this book will find understandable medical infomation, obtain advice that eases their daily life, and feel empowered to be strong advocates for their child. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record. |
| brain tumor guide for the newly diagnosed: 100 Questions & Answers About Brain Tumors Stark-Vance Md, Virginia Stark-Vance, Mary Louise Dubay, 2010-01-29 Whether you’re a newly diagnosed brain tumor patient, a survivor, or a friend or relative of either, this book offers help. Completely revised and updated, 100 Questions & Answers About Brain Tumors, Second Edition gives you authoritative, practical answers to your questions about treatment options, post-treatment quality of life, sources of support, and much more. The authors, a brain tumor survivor teamed with a neuro-oncologist specializing in brain tumors, provide a comprehensive, step-by-step discussion of what you can expect in the diagnosis and treatment of brain tumors, while providing a real-life understanding of what these steps might mean for your day-to-day life. This book is an invaluable resource for anyone coping with the physical and emotional turmoil of this frightening disease. |
| brain tumor guide for the newly diagnosed: Nurse Ted: A Children's Guide to Brain Tumours , 2015-01-31 |
| brain tumor guide for the newly diagnosed: Cancer Registries Amendment Act United States, 1992 |
| brain tumor guide for the newly diagnosed: Everybody Needs a Brain Tumor David Koelliker, 2018-02-15 Everybody Needs a Brain Tumor details the experience of David Koelliker's 8+ year battle with a brain tumor and the many lessons he's learned along the way. According to the American Brain Tumor Association, nearly 80,000 people will be diagnosed with a brain tumor this year. Roughly a third of those are malignant. Every day there are families being told that their mother, father, brother, sister, or child has 3-18 months to live. Your life's 'brain tumor' may be something else. It might be an addiction, a disability, cancer, or losing a close friend or family member. The purpose of this book is to show all that even in life's most difficult challenges, we can find happiness. Through difficult times, we can learn and experience things that we would never have otherwise. It's a book about opportunity and about life, love, and hope.All proceeds will be donated to organizations dedicated to brain tumor research. |
| brain tumor guide for the newly diagnosed: The Neuroscientist Who Lost Her Mind Barbara K. Lipska, Elaine McArdle, 2018-04-03 In the tradition of My Stroke of Insight and Brain on Fire, this powerful memoir recounts Barbara Lipska's deadly brain cancer and explains its unforgettable lessons about the brain and mind. Neuroscientist Lipska was diagnosed early in 2015 with metastatic melanoma in her brain's frontal lobe. As the cancer progressed and was treated, she experienced behavioral and cognitive symptoms connected to a range of mental disorders, including dementia and her professional specialty, schizophrenia. Lipska's family and associates were alarmed by the changes in her behavior, which she failed to acknowledge herself. Gradually, after a course of immunotherapy, Lipska returned to normal functioning, amazingly recalled her experience, and through her knowledge of neuroscience identified the ways in which her brain changed during treatment. Lipska admits her condition was unusual; after recovery she was able to return to her research and resume her athletic training and compete in a triathalon. Most patients with similar brain cancers rarely survive to describe their ordeal. Lipska's memoir, coauthored with journalist Elaine McArdle, shows that strength and courage but also an encouraging support network are vital to recovery. |
| brain tumor guide for the newly diagnosed: Pathology and Genetics of Tumours of the Nervous System Paul Kleihues, Webster K. Cavenee, 2000 The second edition of this concise reference book was prepared by 106 authors from 21 countries and covers the neuro-oncological literature until January 2000. Diagnostic criteria, pathological features and associated genetic alterations are described in a strictly disease-oriented manner. Sections on more than 70 neoplasms and their variants include ICD-O codes, incidence, age and sex distribution, location, clinical signs and symptoms, pathology, genetics and predictive factors. New disease entities include the chordoid glioma of the third ventricle and the cerebellar liponeurocytoma. Inherited tumor syndromes involving the nervous system are dealt with in a separate chapter, combining diagnostic criteria, pathology and genetics. |
| brain tumor guide for the newly diagnosed: Brain Tumors Nimish A. Mohile, Alissa A. Thomas, 2023-11-27 This concise book serves as a practical primer for the care of patients with primary brain tumors. Divided into two major sections, the first provides chapters with key information for each major brain tumor type. This includes basic information about etiology, epidemiology, clinical features, pathology, imaging, diagnostic workup, and treatment. The second section of the book features chapters that delve into supportive care management with specifics about management for each of the major conditions. This includes tumor-related epilepsy, venous thromboembolism in brain tumor patients, and corticosteroid management and toxicity. Detailed and clinically-focused information about chemotherapy regimens, dosing, monitoring, management of toxicities and patient education are also provided. Brain Tumors is a quick resource in the inpatient setting or in the clinic and educational resource to help new providers in the neuro-oncology field with the accumulated knowledge of clinicians with practical experience. |
| brain tumor guide for the newly diagnosed: There's Something Going On Upstairs Kelly Ann Rodenberg, 2019-10 When Kelly Fosso Rodenberg lost dexterity in her left hand, her neurologist suspected there's something going on upstairs. Scans revealed a golf ball-sized, malignant brain tumor nestled above her right ear. Despite the dire statistics associated with her Glioblastoma-Grade 4 diagnosis, Kelly's memoir inspires others with hope and humor. |
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