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| caregivers guide for alzheimer's: Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019) National Institute on Aging, 2019-04-13 The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD |
| caregivers guide for alzheimer's: The Busy Caregiver's Guide to Advanced Alzheimer Disease Jennifer R. Stelter, Rachael Wonderlin, 2021-10-19 The Dementia Connection Model is a recipe to connect families in a way that produces positive interactions and preserves their loved one's level of functioning for as long as possible. The model brings together three concepts in dementia care of what is happening to the person with Alzheimer disease and, more importantly, why these things are happening as the person's condition progresses and how to intervene successfully-- |
| caregivers guide for alzheimer's: A Pocket Guide for the Alzheimer's Caregiver Ellen Woodward Potts, Daniel C. Potts, Daniel C. Potts M. D., 2011-06 The book is the place to turn for initial information and perspective on Alzheimer's disease, and to return for practical advice as problems arise. Most importantly, however, it dispels the sense of hopelessness families may feel by providing steps to maximize the enjoyment of life for the person with Alzheimer's disease. --- Robert C. Griggs, MD, FAAN; 2009 - 2011 President, American Academy of Neurology |
| caregivers guide for alzheimer's: The 36-Hour Day Nancy L. Mace, Peter V. Rabins, 2021-08-10 The 36-Hour Day is the definitive dementia care guide. |
| caregivers guide for alzheimer's: Dementia Caregiver Guide Teepa L. Snow, 2013-10 This simple, easy to read, 100 page guidebook helps family members, friends, and caregivers to better understand the changes that come with advancing dementia or other impairments in thinking, reasoning or processing information. It also reinforces the impact of Teepa Snow's guidance and person-centered care interventions including the GEMS and Positive Approach to Care techniques. The goal is to provide better support and care practices when someone is living with an ever-changing condition. By appreciating what has changed but leveraging what is still possible, care partners can choose interactions that are more positive, communication that is more productive, and care that is more effective and less challenging for all involved. |
| caregivers guide for alzheimer's: What If It's Not Alzheimer's? Gary Radin, Lisa Radin, 2022-10-15 Although the public most often associates dementia with Alzheimer’s disease, the medical profession continues to advance distinctions of various types of “other” dementias. What If It’s Not Alzheimer’s? is the first and remains the only comprehensive guide dealing with frontotemporal degeneration (FTD), the most common form of dementia for people under 60 years of age. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers. Beginning with a focus on the medical facts, the first part defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team, palliative approaches to managing care and rehabilitation interventions. The next section on managing care examines the daily care routine including exercise, socialization, adapting the home environment, and behavioral issues along with end-of-life concerns. In the following section on caregiver resources, the contributors identify professional and government assistance programs along with private and community resources and legal options. The final section focuses on the caregiver, in particular the need for respite, holistic health practices and the challenge of managing emotions. This new, completely revised edition continues to follow worldwide collaboration in research and provides the most current medical information available including understanding of the different classifications of FTD, and more clarity regarding the role of genetics. Additionally, essays written by people living with the disease provide moving, first-hand experiences. The wealth of information offered in these pages will help both healthcare professionals and caregivers of someone suffering from frontotemporal degeneration. |
| caregivers guide for alzheimer's: Coping with Alzheimer's Rose Oliver Ph. D, Rose Oliver, Frances A. Bock, Francis A Bock Ph. D, 1989 You, the caregiver, finds yourself in a situation that threatens to overwhelm you with a welter of conflicting emotions and to undermine your ability to come. You feel that way sometimes. |
| caregivers guide for alzheimer's: When Your Loved One Has Dementia Joy A. Glenner, Jean M. Stehman, Judith Davagnino, Margaret J. Galante, Martha L. Green, 2005-06-17 The result is a guide that integrates the practicalities of caregiving with the human emotions that accompany it. |
| caregivers guide for alzheimer's: Alzheimer's Disease and Other Dementias Nataly Rubinstein, 2011-06-15 A practical, encouraging guide to caring for someone with dementia As a caregiver, you face a multitude of challenging situations and plenty of conflicting information concerning diagnoses, treatments, coping with everyday activities, and dementia itself. This easy-to-read book will give you the necessary resources to make practical and informed decisions regarding the best possible care for you and your loved one. Written by a licensed clinical social worker with twenty-five years of experience working with families coping with dementia, Alzheimer's Disease and Other Dementias: The Caregiver's Complete Survival Guide offers useful and vital information on: Working effectively with health care providers to get the best treatment for your loved one Handling difficult behaviors that change over time Making the home safer using simple, low-cost tools and techniques Evaluating and choosing respite care and long-term care options, including adult day and home care services Finding legal and financial assistance Improving the quality of life for you and your family Drawing from her own clinical and personal experience, Nataly Rubinstein guides you with humor and compassion through your caregiving journey. From tips on preparing for the first visit to the neurologist to advice on coping with changes in daily life, this comprehensive book provides detailed and accessible information for all those caring for someone with memory loss. Book jacket. |
| caregivers guide for alzheimer's: Alzheimer's Medical Advisor Philip Sloane, 2017-07-17 As we move through life many of us find ourselves needing to help a family member or friend with a medical condition. If the condition is temporary, our need to help is temporary. However, chronic conditions such as Alzheimer's and other dementias require longer-term, possibly ever-increasing assistance. Problems with thinking and memory lead to new, different, and often challenging behaviors. In addition, caring for someone with Alzheimer's often means helping them deal with other medical problems that are often difficult to recognize. This book is a resource for caregivers of people with Alzheimer's or dementia who are also beginning to experience non-memory-related medical conditions. It addresses 54 medical conditions that caregivers often must deal with when providing care. Each medical condition is addressed in an easy-to-follow, two-page guide that provides basic facts about the medical condition, signs that indicate a possible emergency, tips on providing relief in the home, other related issues to watch out for, and safety tips for the caregiver. Written by experts at the University of North Carolina at Chapel Hill and Duke University, this book is based on the latest clinical knowledge and scientific research on Alzheimer's and the care of Alzheimer's and dementia patients. It includes basic facts about Alzheimer's disease and other dementias and practical guidance when conferring with doctors and nurses, when visiting hospitals, nursing homes, and assisted-living residences, and during the dying process. Also, an entire chapter is devoted to what caregivers need to do to take care of themselves while helping someone with Alzheimer's and related dementia. p.p1 {margin: 0.0px 0.0px 0.0px 0.0px; font: 12.0px Arial} |
| caregivers guide for alzheimer's: The Complete Family Guide to Dementia Thomas F. Harrison, Brent P. Forester, 2022-08-10 If you are facing the unique challenges of caring for a parent with dementia, you are not alone. What do you do when your loved one so plainly needs assistance, but is confused, angry, or resistant to your help? Where can you find the vital information you need, when you need it? Journalist Thomas Harrison and leading geriatric psychiatrist Brent Forester show that you don’t have to be a medical expert to be a good care provider in this authoritative guide. They explain the basics of dementia and offer effective strategies for coping with the medical, emotional, and financial toll. With the right skills, you can navigate changing family roles, communicate better with your parent, keep him or her safe, and manage difficult behaviors. Learn how to care smarter, not harder--and help your loved one maintain the best possible quality of life. Winner (Second Place)--American Journal of Nursing Book of the Year Award, Consumer Health Category Winner (Third Place)--Foreword INDIES Book of the Year Award, Family & Relationships Category |
| caregivers guide for alzheimer's: A Caregiver's Guide to Alzheimer's Disease Roger A. Brumback, MD, Patricia R. Callone, MA, MRE, Connie Kudlacek, BS, Janaan D. Manternach, Barbara C. Vasiloff, MA, 2006-01-01 An estimated 5 million Americans have Alzheimer's disease. That number continues to grow - by 2050 the number of individuals with Alzheimer's could range from 11.3 million to 16 million. Alzheimer's disease is not a normal part of aging. It is a devastating disorder of the brain's nerve cells that impairs memory, thinking, and behavior. Written for patients, their families, and caregivers, A Caregiver's Guide to Alzheimer's Disease: 300 Tips for Making Life Easier will help readers understand what is physically happening to the brain so they can empower their own special skills and talents throughout the disease process. The book is divided into three sections that correspond to the progression of Alzheimer's and the unique challenges encountered at each stage. Section A: The major part of the book divides the progression of the disease into Stages: the Pre-Clinical Stage; Early-To-Mild Stage, which marks the onset of the disease; Moderate Stage; and the Severe Stage. Hundreds of practical tips geared to coping and compensating at each level of the disease provide support for the affected individual and the caregiver. Section B: A bonus section of questions and answers addresses specific issues caregivers face and give them points to reflect on as they continue the process. Key topics covered include: Legal and financial issues Family Forums in the caregiving process The role of medication at various stages of the disease Helping children understand what is happening to a loved one Handling the holidays and celebrations Making the living environment more stimulating and enjoyable Section C: Lists resources and suggests websites to find additional information about the disease itself as well as related valuable networks. With an abundance of pointers and guidelines for affected individuals, their families, friends and caregivers, A Caregiver's Guide to Alzheimer's Disease: 300 Tips for Making Life Easier is essential for all readers who want to focus on the capabilities that remain instead of those that have been lost. |
| caregivers guide for alzheimer's: The Caregiver's Guide to Memory Care and Dementia Communities Rachael Wonderlin, 2022-09-06 When is it time to move a person living with dementia into a senior living community? How do you avoid an argument with someone who no longer knows what year it is? What do you do if the person you're caring for has trouble recognizing you? How can you lessen the guilt and anxiety that come with dementia caregiving? All of these questions-and more-are answered in this helpful guide through the difficulties of dementia care. Care partners to those living with dementia will find this book a helpful guide into an unfamiliar and challenging world, and professionals in the industry will come away with dementia knowledge they have not gotten anywhere else-- |
| caregivers guide for alzheimer's: A Caregiver's Guide to Dementia Laura N. Gitlin, Catherine Verrier Piersol, 2014 [This book] explores the use of activities and other techniques to prevent, reduce and manage the behavioral symptoms of dementia. Separate sections cover daily activities, effective communication, home safety and difficult behaviors, with explicit strategies to handle agitation, repetitive questions, acting-out, wandering, restlessness, hoarding, resistance to care, incontinence, destructiveness, sexually and socially inappropriate acts at home and in public, aggressiveness, depression, and sleep disturbances. Worksheets are provided to help caregivers customize the strategies that work best for them. -- Back cover. |
| caregivers guide for alzheimer's: Practical Dementia Care Peter V. Rabins, Constantine G. Lyketsos, Cynthia D. Steele, 2006-01-19 This is a comprehensive yet practical guide to the care and management of patients with dementia from the time of diagnosis to the end of life. It is intended for the increasing number of physicians, nurses, psychologists, social workers, rehabilitation therapists, and long-term care givers responsible for the care of individuals with dementia. For the Second Edition, the authors have added a chapter on mild cognitive impairment. The sections that received the most extensive revision or expansion include those on drug therapy; the pathophysiology of several causes of dementia; psychiatric symptoms of dementia and their treatment (especially drug treatment); and dementia in special environments (especially assisted living and nursing homes). |
| caregivers guide for alzheimer's: Creative Engagement Rachael Wonderlin, 2020-08-11 An activity book to help caregivers improve the quality of life of people who have dementia. Whether they are cared for at home or in an assisted living community, adults living with dementia should be offered a life that is interesting and fun. But what can you do to enhance the everyday experience of a loved one who is losing interest in or is unable to participate in their old hobbies and pursuits? In Creative Engagement, dementia activity expert Rachael Wonderlin and developmental psychology professor Geri M. Lotze provide dozens of creative, hands-on ways to engage with people living with cognitive loss. Teaching caregivers how to find dementia-friendly daily activities and introduce them into a person's life, this comprehensive, empathetic guide is aimed at both family members and professionals. Twelve chapters full of useful, tangible activities touch on a range of topics, including exercise, technology, cooking and baking, memory games, and arts and crafts. Focusing on both group and individual dynamics, mundane activities and specially tailored pursuits, Wonderlin and Lotze offer proven strategies for interacting with people living with dementia. The authors include detailed tips for building a dementia-friendly environment, creating a daily calendar, and scheduling community entertainment. They also suggest special activities geared toward people in hospice care and give targeted advice for dealing with caregiver stress. Drawing on Wonderlin's own practice while incorporating the latest scientific research on dementia and eldercare, Creative Engagement is unique in its dementia-positive approach. Anyone who cares for someone living with dementia will gain valuable knowledge from this compassionate book. |
| caregivers guide for alzheimer's: Supporting the Caregiver in Dementia Sheila M. LoboPrabhu, Victor Molinari, James W. Lomax, 2006-06-19 Dementia is one of the greatest challenges facing seniors and their caregivers around the globe. Developed by experts in both research and practice, this guide for mental health clinicians explores the experience of caregiving in dementia, discussing the latest research developments and sharing clinical pearls of wisdom that can easily be translated to daily practice. The contributors explore the history of caregiving and then examine the current demographics of caregivers for persons with dementia. They discuss who provides care, the settings in which it is delivered, and the rewards and burdens of caregiving. They place special emphasis on understanding the psychological needs of both the person with dementia and the caregiver, as well as interpersonal bonds, spiritual dimensions, and reactions to grief and loss. Using a multidisciplinary approach to treatment for caregivers, this book addresses the role of pharmacotherapy, individual and family interventions, and social supports. Finally, the authors reflect on societal issues such as health care policies, ethnic elders, and ethics. This volume offers health professionals insights into the daily lives of caregivers, along with tools to provide their patients with the support they need. |
| caregivers guide for alzheimer's: Dementia with Dignity Judy Cornish, 2019-01-22 The revolutionary how-to guidebook that details ways to make it easier to provide dementia home care for people experiencing Alzheimer's or dementia. Alzheimer's home care is possible! Dementia with Dignity explains the groundbreaking new approach: the DAWN Method(R), designed so families and caregivers can provide home care. It outlines practical tools and techniques to help your loved one feel happier and more comfortable so that you can postpone the expense of long-term care. In this book you'll learn: -The basic facts about Alzheimer's and dementia, plus the skills lost and those not lost; -How to recognize and respond to the emotions caused by Alzheimer's or dementia, and avoid dementia-related behaviors; -Tools for working with an impaired person's moods and changing sense of reality; -Home care techniques for dealing with hygiene, safety, nutrition and exercise issues; -A greater understanding and appreciation of what someone with Alzheimer's or dementia is experiencing, and how your home care can increase home their emotional wellbeing. Wouldn't dementia home care be easier if you could get on the same page as your loved one? When we understand what someone experiencing Alzheimer's or dementia is going through, we can truly help them enjoy more peace and security at home. This book will help you recognize the unmet emotional needs that are causing problems, giving you a better understanding and ability to address them. The good news about dementia is that home care is possible. There are infinitely more happy times and experiences to be shared together. Be a part of caring for, honoring, and upholding the life of someone you love by helping them experience Alzheimer's or dementia with dignity. Judy Cornish is the author of The Dementia Handbook-How to Provide Dementia Care at Home, founder of the Dementia & Alzheimer's Wellbeing Network(R) (DAWN), and creator of the DAWN Method. She is also a geriatric care manager and elder law attorney, member of the National Association of Elder Law Attorneys (NAELA) and the American Society on Aging (ASA). |
| caregivers guide for alzheimer's: The Real Alzheimer's Suzanne Giesemann, 2012-08-01 If the word Alzheimer's has become part of your vocabulary, you're probably looking for answers. What can I expect? How do I deal with this disease? Hold on for a no-holds-barred look at what it's like to live day to day with Alzheimer's disease. Other books and Internet websites provide signs, symptoms, and checklists. The Real Alzheimer's tells it like it really is in 21 candid interviews with caregivers, family members, practitioners, and the patients themselves. These emotionally compelling true stories of ordinary people coping with the different facets of Alzheimer's disease cover a variety of situations: husbands or wives caring for their partners, children caring for their parents, and practitioners caring for their patients. You'll hear from a cross-section of society: high income and low, well-educated and street-wise. You'll witness the beginning, middle, late, and end stages of this devastating disease. You'll meet caregivers dealing with their struggles alone, those paying for in-home care, and those who have placed their loved one in a nursing home. With awareness comes understanding and acceptance. The Real Alzheimer's is filled with the often poignant, sometimes funny, occasionally earthy, and always thought-provoking experiences and advice of those who are personally dealing with Alzheimer's disease and other forms of dementia. Here you'll find an honest and heartfelt look at what to expect when the diagnosis of Alzheimer's becomes a reality, and the best way to handle the challenges that lie ahead. |
| caregivers guide for alzheimer's: The Complete Guide to Alzheimer's-proofing Your Home Mark L. Warner, 2000 Shows how to create a home environment that helps cope with the difficulties associated with AD and related dementia. The author deals with both interior and exterior spaces, discussing problems and solutions associated with specific areas such as the kitchen, bathroom, corridors, patios and decks. Separate chapters focus on issues related to AD such as wandering, incontinence and access limitation. |
| caregivers guide for alzheimer's: A Leader's Manual for Dementia Care-Partner Support Groups Edward G. Shaw, Alan Wolfelt, 2020-11 The Dementia Care Partner's Workbook is a new resource from Companion Press that is both a support group participant's manual and self-study guide for care partners who have a loved one with Alzheimer's disease or another form of dementia. Its ten concise lessons not only walk you through the types, brain biology, and progressive symptoms of dementia but also offer practical tips for managing behaviors, coping with emotional issues, prioritizing self-care, and planning ahead--everything from diagnosis to end-of-life.The Manual provides general information about establishing and leading support groups, counseling skills for leaders and co-leaders, how to handle challenging group participants, step-by-step instructions on how to run each of the ten individual weekly meetings (including meeting-specific handouts), and lots of practical advice. |
| caregivers guide for alzheimer's: A Caregiver's Guide to Lewy Body Dementia Helen Buell Whitworth, MS, BSN, James Whitworth, 2010-10-20 Received a 2012 Caregiver Friendly Award from Today's Caregiver Magazine Although Lewy Body Dementia is the second leading cause of degenerative dementia in the elderly, it is not well known or understood and is often confused with Alzheimer' Disease or Parkinson's. The Caregiver's Guide to Lewy Body Dementia is the first book ot present a thorough picture of what Lewy Body Dementia really is. A Caregiver's Guide to Lewy Body Dementia is written in everyday language and filled with personal examples that connect to the readers' own experiences. It includes quick fact and caregiving tips for easy reference, a comprehensive resource guide, and a glossary of terms and acronyms. This is the ideal resource for caregivers, family members, and friends of individuals seeking to understand Lewy Body Dementia. |
| caregivers guide for alzheimer's: Alzheimer’s and Dementia Kim Boyer, Mary Shapiro, 2011-10-01 Individuals or families receiving a diagnosis of Alzheimer’s disease, dementia, or brain damage from a stroke face daunting questions: how to provide for care when the patient can no longer manage his or her own affairs, how to protect their rights and property, where to go for help, and how to cope with the day-to-day challenges of fading memory and diminished cognition. Here is a comprehensive guide specifically for aging Nevadans and for family members, professional caregivers, and health care workers who help them. The authors—an elder law attorney and a specialist in geriatric care management—offer readers useful advice from the perspective of Nevada resources and Nevada law, addressing such topics as the legal and financial steps that patients and their families can take to protect themselves and their assets, paying for long-term care, arranging for guardianship, and tending to the details that follow the death of a loved one. This edition, updated in 2011, includes information about recent changes in laws that affect seniors, new research and treatments, and a new guide to resources throughout the state that can provide assistance to people afflicted with these medical conditions. |
| caregivers guide for alzheimer's: Did I Remember to Tell You? Pam Kovacs Johnson, 2020-08-31 While there is an abundance of information about dementia for family caregivers to learn symptoms, skills, do’s and don’ts, there is little to help them comprehend why it is so important to do everything differently than before this disease. And to fully understand the consequences when they don’t. From the book Did I Remember To Tell You? caregivers gain insight into the difficulty of doing and saying the right things for the right reasons, in accordance with best care practices and are guided towards being the “perfect” caregiver. It is based on Pam Johnson’s professional experience, spanning over forty years working with older adults in a variety of health care settings, coupled with the invaluable personal knowledge she gained while caring for her father. Learning about the disease and daily challenges from real-life stories effectively shows rather than tells caregivers what they need to know to make it from one day to the next. The stories create a powerful understanding of the tremendous impact this disease has on a loved one and remind us that Alzheimer’s and other dementias are about much more than mere forgetfulness. With a casual conversational tone, Johnson teaches caregivers to speak compassionately, cope more effectively, and expect the unexpected. |
| caregivers guide for alzheimer's: Creating Moments of Joy Along the Alzheimer's Journey Jolene Brackey, 2016-11-15 The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves. |
| caregivers guide for alzheimer's: My Life Rearranged Susan G. Miller, Pssst ...is your life being rearranged? You are not alone. Alzheimer’s and dementia will turn your life inside out and upside down. In fact, there are many days you won’t know if you are coming or going. Susan Miller knows those days. Her husband was diagnosed with Early-Onset Alzheimer’s. She became the long distance caregiver for her father’s medical issues, followed by her mother’s diagnosis of dementia and then a diagnosis of Alzheimer’s for her mother-in-law. After decades of caregiving and years of widowhood, Susan met a wonderful widower, only to discover signs of dementia. My Life Rearranged gives voice to what many caregivers think, but are reluctant to admit.You will discover: •The issues of love, loss, responsibility, duty, and self-preservation while navigating the stages of the disease. •What it’s like to struggle with a disease that strikes terror in people’s hearts and offers ways to come through intact. •How to lessen the isolation and loneliness of caregiving, and bring honest insight into the life of a caregiver. Imagine coming home from the store and layingyour package down, only to find it gone thirty minutes later, nowhere to be found. Imagine looking for your favorite cereal in the morning, not finding it anywhere, and only later when you go to do a load of wash, do you find it. Imagine living with your spouse of many years, only to awaken one day and find he has turned into a child. Imagine thinking you are living in a house of cards, or that you are imagining it all, or perhaps it’s just a dream and you’ll soon awaken, but it’s not and you don’t. Imagine repeating this scenario over and overagain. My Life Rearranged will tug at your heart, touch your soul, inspire you, and help you believe in your capabilities. |
| caregivers guide for alzheimer's: Alzheimer's Howard Gruetzner, 2001-07-20 The landmark bestselling guide—now updated with the latest essential information The third edition of this critically acclaimed guide leads you through the realities of caring for a loved one struggling with Alzheimer’s. The author, a nationally recognized authority, details the latest developments in treatment and care options and offers helpful, hopeful advice for getting through difficult challenges. Now fully revised and updated, this edition includes new chapters designed to help caregivers cope with stress and depression and offers information on the latest breakthrough research developments and treatments. Alzheimer’s speaks directly to your vital concerns, including: • the symptoms and traits of Alzheimer’s, what to expect at each progressive stage, and how to respond to behavior problems • the full range of treatments and support services available, including tips on how to locate and finance them • ways to understand your feelings and the impact of grief • new information on managing caregiver stress and chronic depression in sufferers • the latest therapies and medical research With its sensitive and in-depth examination, Alzheimer’s shows how to make the care you give more rewarding and effective and how to make the life of anyone caught in the grip of Alzheimer’s more loving and comfortable. |
| caregivers guide for alzheimer's: Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's Patti Davis, 2021-09-28 With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition. |
| caregivers guide for alzheimer's: Six Steps to Managing Alzheimer's Disease and Dementia Andrew E. Budson MD, Maureen K. O'Connor PsyD, 2021-08-23 Your needs as a caregiver are just as important as those your family member with Alzheimer's Disease or dementia. This book will provide just the insight and guidance you need. Caregiving for a loved one with Alzheimer's disease or dementia is hard. It's hard whether you're caring for your spouse, parent, grandparent, sibling, other family member, or friend. Even if you had an extra ten hours each day to do it, it's hard to manage all the problems that come with dementia. And caring for a loved one with dementia can sometimes feel like a long, lonely journey. Six Steps to Managing Alzheimer's Disease and Dementia can help, addressing concerns such as: · Is the problem Alzheimer's, dementia, or something else? · How do you approach problems in dementia? · How do you manage problems with memory, language, and vision? · How do you cope with emotional and behavioral problems? · What are the best ways to manage troubles with sleep and incontinence? · Which medications can help? · Which medications can actually make things worse? · How do you build your care team? · Why is it important to care for yourself? · How do you sustain your relationship with your loved one? · How do you plan for the progression of dementia? · How do you plan for the end and beyond? Six Steps to Managing Alzheimer's Disease and Dementia is comprehensive yet written in an easy-to-read style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage Alzheimer's disease and dementia. |
| caregivers guide for alzheimer's: The Busy Caregiver's Guide to Advanced Alzheimer Disease Jennifer R. Stelter, 2021-10-19 The only guide to caring for those with advanced Alzheimer disease. Winner of the IPPY Book Award Health/Medicine/Nutrition by the Independent Publisher Caring for someone living with advanced Alzheimer disease is a challenge. It can make you feel like you're on a hamster wheel—running in circles, trying the same things over and over with no effect on your loved one. You may also find it difficult to connect with your loved one and to understand what those living with Alzheimer disease are going through. In The Busy Caregiver's Guide to Advanced Alzheimer Disease, Dr. Jennifer Stelter, a psychologist working in memory care, shares a new model designed to help caregivers understand, cope with, and handle some of the most challenging behaviors associated with the disease while encouraging and reinforcing independence and quality of life for their loved ones. Her Dementia Connection Model, which is based on current scientific research, will aid you in forging a positive bond with your loved one with less frustration. Win-win! Follow along, step by step, as Dr. Stelter outlines the three main elements of the Dementia Connection Model and learn how to put these elements into practice to help with • communication problems • eating difficulties • mobility concerns • memory deficits • behavioral issues • toileting trouble • and other common complications of Alzheimer disease. The evidenced-based, practical interventions and strategies in The Busy Caregiver's Guide will help you stay emotionally, mentally, and physically involved in your loved one's life. Special dedicated worksheets help you practice the skills and keep track of what is working. You'll also read stories about other caregivers who face the same struggles. |
| caregivers guide for alzheimer's: When Caring Takes Courage Mara Botonis, 2014-05-12 When Caring Takes Courage Professional caregivers have long had several choices when it comes to dementia care training resources and, likewise, family members could learn from other at-home non-professional caregivers. When Caring Takes Courage is unique in that it culls best practices from both groups and arranges them into an understandable go-to reference. When Caring Takes Courage follows the path of Alzheimer s disease from its onset, what the disease is and how to seek preliminary diagnosis, all the way to hospice care and all that happens in between. The book includes tips to help with everyday challenges such as bathing, toileting, managing medications and dealing with difficult behaviors. Readers will gain access to customizable tools such as: The Alzheimer s and Dementia Symptom Tracker, Alzheimer s Care Needs Calculator, Affording Alzheimer s Care in Today s Economy Worksheet, Alzheimer s at Home Weekly Care Planner and more. When Caring Takes Courage is intended to be USED not just simply READ, striving to serve Alzheimer s and Dementia caregivers as a constant companion on what can, at times, feel like a lonely journey. Helping caregivers impacted by the disease create better, brighter days with their loved ones. |
| caregivers guide for alzheimer's: When the Doctor Says, "Alzheimer's" Betty Weiss, 2013-04-09 Although one in ten Americans over 65 and half of those over 80 has Alzheimers, its one of the most hidden, misunderstood diseases ever known. Because patients appear normal, few believe anything is wrong. Cognitive tests can't show the full extent of its devastation on victims and familiesand it is a family diseaseeveryone is affected. It doesnt happen overnight, it sneaks in over yearsdecades; denial, blame and conflicts arise, few know what to do. What caused it? Will I get it? He keeps falling. He's violent! Why isn't there a cure? The doctor doesn't understand. What's an MRI, MMSE? I feel so guilty. Not every anguished question has an answer, but many of them do, and learning how to best deal with much of it is found in this Revised Edition of When the Doctor Says, 'Alzheimer's: Your Caregivers Guide to Alzheimers & Dementia. Its an indispensible book written by a hands-on caregiver with ten years of personal experience and endless research caring for her husband with Alzheimers and contains some of the best first-hand advice you'll ever receive. Caring for someone with Alzheimers is uniquely different from other medical conditions. In time, the patient is unable to help in his own care, even to follow such simple instructions as 'stand up' or 'sit down, creating a difficult situation for everyone. Perhaps you think when someone forgets, you just remind them; no one forgets their own children, how to eat, dress and use the bathroom! But they do! In this book, you'll learn things you need to know that will seem counterintuitive and require changes in your normal responses. You will come to understand the basics of the illness, why such bizarre things happen, and how to react to unexpected and on-going problems without making things worse. |
| caregivers guide for alzheimer's: Alzheimer's. Dementia. What Now? Jim Henry, Deb Terry, 2020-08-31 If you are caring for or supporting a loved one with Alzheimer's or dementia you know that is not an easy journey. This book will give you practical advice mixed with spiritual wisdom and counsel gained from personal experience. The authors, Jim Henry and Deb Terry, have personally walked through the loss of a spouse and a parent to this disease. From their experiences they will help you through 18 Central Questions that you will undoubtably face from early onset through advanced stages. You will gain strength and comfort as you become the most effective caregiver possible while also taking care of yourself along the way. |
| caregivers guide for alzheimer's: When Reasoning No Longer Works Angel Smits, 2017-06-04 Nearly five million families deal with Alzheimer's Disease and other forms of dementia on a daily basis. They do this with little training, and often only their good intentions guide them. When Reasoning No Longer Works is the training manual these family caregivers have been searching for.Written by a Gerontologist with more than twenty years of experience, this reference gives the reader an easy to understand view of what dementia does to the brain, how it is diagnosed, and most importantly, how to deal with its effects.Bulleted lists clearly explain* How to avoid a catastrophic reaction* Specific approaches for aggressive behavior* How to deal with disruptive behaviors* Ways to diminish wandering* What to do when a wanderer is missing* When to look for outside helpYou'll also follow the story of Lou and Rose, a couple who share their lives with Alzheimer's disease. Together, they find the answers to questions caregivers and victims are sometimes afraid to ask. |
| caregivers guide for alzheimer's: Reducing the Impact of Dementia in America National Academies of Sciences Engineering and Medicine, Division of Behavioral and Social Sciences and Education, Board on Behavioral Cognitive and Sensory Sciences, Committee on the Decadal Survey of Behavioral and Social Science Research on Alzheimer's Disease and Alzheimer's Disease-Related Dementias, 2022-04-26 As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia. |
| caregivers guide for alzheimer's: Finding the Light in Dementia Jane M Mullins, 2017-12 'Finding the Light in Dementia: a guide for families, friends and caregivers' is an essential book that explains common changes that can occur in those living with dementia. By offering valuable approaches, tips and suggestions interspersed with individuals' stories, the reader can learn to care for and maintain a connection with their loved one (care partner). Whether you're a spouse, partner, daughter, son, sibling, friend or even a parent caring for a loved one living with dementia, this book is for you. Finding the Light in Dementia will help give you more confidence to care by: Supporting you through your partner's diagnosis of dementia Helping you understand what your partner is experiencing Teaching you ways to communicate and connect with each other Helping you make subtle changes to your home to help your partner feel safe and content Introducing practical and creative ways to stimulate memories to help with day to day living Showing you how to create lifestories together Suggesting ways to keep your partner interested and engaged in meaningful activities Providing tips for sleeping, eating and drinking Suggesting ways to help your partner with their appearance and dignity Showing you ways of overcoming the challenges of changing behaviour, reactions and responses Helping reduce the effects of hallucinations, delusions and misperceptions Suggesting ways for you to care for yourself Involving families and friends Giving advice when considering professional care at home and in residential care Knowing how tired and stressed you may feel, 'Finding the Light in Dementia' is written in bite sized chunks that makes it easy to follow. By giving you space to write down any points you would like to make and providing question sheets for you to refer to when speaking with your doctor and/or legal professionals you can make this your personal guide. When following the approaches in this book, you should find that your partner will feel more understood and you will become calmer thereby helping you both find a sense of connection and continue to live well. |
| caregivers guide for alzheimer's: Surviving Alzheimer's PAULA SPENCER. SCOTT, 2018-01-11 The book recommended by dementia experts and family caregivers as the most complete, practical guide to Alzheimer's and other dementias-now updated and expanded through end-of-life care. This new edition of Surviving Alzheimer's offers the best, most current thinking on how to help a loved one with memory loss and related symptoms without sacrificing YOU. You'll learn: What's behind odd, frustrating behaviors like repetition, wandering, personality changes, bathing resistance, and aggression-and what you can do How to defuse resentment, guilt, and family friction What to say for better communication and more cooperation Special advice for spouses, out-of-town caregivers, and other specific situations 100s of confidence-raising solutions from top doctors, social workers, dementia specialists, and family caregivers All in a fast, scannable format perfect for busy or overwhelmed dementia helpers. |
| caregivers guide for alzheimer's: Activities to Do with Your Parent who Has Alzheimer's Dementia Judith A. Levy, Judith a Levy Edm Otr, 2014-01-07 This book will provide a selection of user-friendly activities that will help maintain your parent's self-care skills, mobility, and socialization. These tasks encourage success and feelings of self-worth, and offer imaginative ways to interact with your parent. |
| caregivers guide for alzheimer's: The Dementia Handbook Judy Cornish, 2017-03-13 Providing dementia care is profoundly stressful for families and caregivers. People with dementia or Alzheimer's experience emotional distress, which leads to behavioral complications and the need for institutional care. However, if families and caregivers are able to identify the emotional needs caused by dementia and understand which skills are lost and which remain, they can lower the behavioral complications and their own stress. Dementia and Alzheimer's are very personal and individual experiences they vary from person to person. However, Cornish has identified a pattern in the abilities and disabilities of people living with dementia. Based on her findings, Cornish was able to develop methods for caregivers to ease emotional distress, which can quickly and safely resolve behavioral complications. Though people with dementia lose a sense of self, they are still the same person you always loved. Judy Cornish understands this. The Dementia Handbook: How to Provide Dementia Care at Home is the supportive guide you've been looking for as you walk alongside your loved one on this difficult but potentially rewarding new path. |
| caregivers guide for alzheimer's: A Caregiver's Guide to Alzheimer's Disease Patricia R. Callone, MA, MRE, Connie Kudlacek, BS, Barabara C. Vasiloff, MA, Janaan D. Manternach, Dr. Roger A. Brumback, MD, 2006-01-01 An estimated 5 million Americans have Alzheimer's disease. That number continues to grow - by 2050 the number of individuals with Alzheimer's could range from 11.3 million to 16 million. Alzheimer's disease is not a normal part of aging. It is a devastating disorder of the brain's nerve cells that impairs memory, thinking, and behavior. Written for patients, their families, and caregivers, A Caregiver's Guide to Alzheimer's Disease: 300 Tips for Making Life Easier will help readers understand what is physically happening to the brain so they can empower their own special skills and talents throughout the disease process. The book is divided into three sections that correspond to the progression of Alzheimer's and the unique challenges encountered at each stage. Section A: The major part of the book divides the progression of the disease into Stages: the Pre-Clinical Stage Early-To-Mild Stage, which marks the onset of the disease Moderate Stage and the Severe Stage. Hundreds of practical tips geared to coping and compensating at each level of the disease provide support for the affected individual and the caregiver. Section B: A bonus section of questions and answers addresses specific issues caregivers face and give them points to reflect on as they continue the process. Key topics covered include: Legal and financial issues Family Forums in the caregiving process The role of medication at various stages of the disease Helping children understand what is happening to a loved one Handling the holidays and celebrations Making the living environment more stimulating and enjoyable Section C: Lists resources and suggests websites to find additional information about the disease itself as well as related valuable networks. With an abundance of pointers and guidelines for affected individuals, their families, friends and caregivers, A Caregiver's Guide to Alzheimer's Disease: 300 Tips for Making Life Easier is essential for all readers who want to focus on the capabilities that remain instead of those that have been lost. |
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